My name's Helen, I'm 26 and as well as working in a call centre full time in Loughborough, I'm also studying for a law degree (which will be my 3rd - and final i think - degree).
Anyway, for the last 3 years or so (longer than that on and off, but the last 3 years its been getting gradually worse) I've been getting lots of problems with my joints, the doctors always just turning me away and just saying that I should "keep taking the painkillers". At one point they sent me for an MRI on my knee only to apparently find nothing wrong with it (they then sent me to Physiotherapy hoping that would cure it...it did alleviate the symptoms for a while, but they come back intermittently) and then another time I actually collapsed in Marks and Spencer in Derby with an unbelievable pain in my wrist joint; I was literally screaming in pain and loads of people were staring at me thinking I'd been hit by someone
So then on Sunday just gone I go to bed and while reading I start realising that I can't get my right ankle to get comfortable, no matter which way I place it then I wake up the next morning to find it swollen and really sore.
So anyway to cut a long story short, I go to the walk in centre in Derby which just tells me to go to my GP. I make an appointment and go on Thursday.
Now I'm not one to normally freak out in a doctors office, but to be quite honest as I'm sure you can all appreciate just how annoyed I have become, given that I always seem to be fobbed off by them as if I'm making up the pains in my joints just for the sake of it. As such, just as the Doctor says something along the lines of "there's nothing that we can really do..." I burst into tears. He freaks out slightly (starts just saying "ok...right...yes..." as if its shocking that someone would be crying in his office because he hadn't given a diagnosis they wanted). He then proceeds to look at my ankle again and ask if anyone had previously considered that all these joint issues might be linked. Of course I say no, so he looks at the mobility of my ankles, then he gets me to stand up so he can look at my knees, then finally looks at my elbows before going on (of all things) patient.co.uk and comes up with hypermobility. He tells me to go away, research it and then come back and see them if I think I have it.
Well...I did just that and wow. It's like a light has been switched on in my head! Looking at the diagnosis outline on this website, I have a beighton score of 4/9, arthalgia in my joints (presently 3, but that does vary), soft tissue rheumatism (in my wrist and ankle at the moment) and myopia. I know its not completely conclusive, but its SO good to finally realise that I may have a name for everything that I'm suffering!!!
Anyway, enough of my rambling...just very glad to have finally found somewhere I can talk about all this and know that I won't be turned away like I'm a lunatic and that I'm imagining things