Feeling let down by doctors

[madmum]

Ignorant ... A mail shot to him seems in order. New gp I think!! There are articles from the hmsa supporting that they are the same. If you can get some in to the appeal it may help.

[madmum]

HMSA line is 0845 3454465. Also pm barkingmad,she is brilliant!

[GreenLantern]

Going to print out a lot of stuff for the appeal, also going to take it all down to my GP tomorrow!

The GP would't listen but told me partner he 'didn't want to fall out over it'

My partner told him the pages and even told him about this forum but he wouldn't have it

[madmum]

Is it worth phoning Prof G office at UCHl and seeing if they have anything they could send supporting that eds3hypermobile type and hms are one and the same?

[GreenLantern]

I've been on to the HMSA and the woman I spoke to said they are the same thing! She said it's very common in people but not very common to doctors. and that to claim DLA I don't even need a diagnosis at all.

[madmum]

Hope you feel a little better now. Glad you got positive advice,I have enormous praise and respect for hmsa. Proud to be a mamber. We are all here for you.

[GreenLantern]

Yeah I do feel better, feel like my world hasn't ended I'm going to join the HMSA as soon as I get some money together.

Thank you all for your help.

[madmum]

Glad to be of help. It makes another bendy feel a little better to help. Good luck with dla appeal. Hope you get sorted financially soon,the stress always makes us feel worse. Hugs

[GreenLantern]

Yeah I pretty much had a meltdown when I got the letter, yay for my partner speaking to the GP on the phone.

*Hugs back*

[sheppeyescapee]

Yes you can get DLA without a diagnosis as it is based on care/mobility needs rather than the diagnosis itself As long as you have evidence to show that you have difficulties and need help with what you have put on the form then it should be fine. It is getting harder and harder to get, but I wouldn't be put off because a lot of people are turned down at first. Yes it really is emotionally draining and challenging, it plunged me into a rather nasty depression doing that form, but it is worth it because we can afford stuff that I need to help me cope and it passports onto so many things! Hang in there

[GreenLantern]

Thanks, What evidence is needed? all I have is my word and my partners word, would that be enough do you think?

[Rosie]

Hi all

Please keep any discussion about DLA to the appropriate threads in the Benefits section. Posts about DLA in this thread will be deleted.

Rosie

[ciderpig122]

here ya go

http://www.dwp.gov.uk/publications/spec ... -syndrome/

this is the bit of boomf the government use to decide about DLA, so if the GP doesnt know his a*** from his elbow, this will be clear in your appeal as Prof G wrote the above article

[ciderpig122]

OOOPS Rosie, sorrrrryyyyy, can you just delete the DLA bit and leave the DWP defenition on here (sorry I replied on page 1 not page 2)
It's done

[GreenLantern]

ciderpig122, thank you so much for that link, I'm going to print it off and take it to the CAB tomorrow, I am also going to take a copy in for my GP