Insensitive comments

[juliepops]

I should have reported him really but was so stressed that day it didn't occur to me to take down details. I'm not usually very good at sticking up for myself so I surprised myself by plucking up the courage to confront him.

I did tell the post office about their van and they said they would ask them not to park there anymore - we'll see!

[trekster]

good on you for reporting the idiots!

[cracker]

well done julie the postmen should know better. hope he got told off.

[GreenLantern]

Some of the comments people say are awful, reading on here what people have had said to them is disgusting! I've been told I'm making it up, it's all in my head, there's nothing wrong with me, I'm lazy, I'm just saying I have something wrong with me so I don't have to work (I do work!) or so I can claim DLA or more! that I'm only saying I have something wrong with me so I can have people do things for me, that I 'badgered' the doctor to get a diagnosis. Luckily those comments are not from people that matter to me but it does still sting a bit.

[cracker]

I have had some evil looks when I come out of a disabled loo, and once had someone tell me that they are not for people with broken legs, they are there for proper disabled people. Did feel like biting her head off, but managed to get away with just saying that I need the handrails as I have an inherited condition. That shut her up! :boxer:
On a good day I don't mind the comments so much, but being stared at really bugs me.

i get that sometimes it bugs me & i sometimes feel like hiding in a corner & crying.
i been sworn at a few times too last time that happend i told a center securtiy guard on them & the person got told off they soon said sorry to me then.

[Tabi]

Went to the local 'bendy' meet on Saturday, then on Saturday afternoon sitting with my mum she said "I don't know if it's a good idea you going to meet those people. I mean, they've all got crutches and wheelchairs and you're not that bad"

No, mum, I'm not that bad. I hide from you how much I hurt; you've never seen me use a stick as I can normally manage round the shops with you; you don't notice my knee braces under my jeans; you don't know I lie awake for hours waiting for my TENS and the meds to kick in enough for me to be able to sleep. I am lucky because so far I can still walk unaided most of the time. You have enough on your plate and I don't want to worry you until it becomes unavoidable.

But apart from that, I meet "those people" because they're nice, because I like chatting with them. Her own mum, my nan, had motor neurone disease; you'd think she'd have more understanding.

Oh gosh! You're one of mine

Would you like me to ...explain... things to her?

*huuuugs*

[trekster]

My mums also really bad at accepting my needs. I got nagged at after a very exhausting weekend for not helping in the kitchen. I can't even get my own kitchen sorted out (even with pacing as my brains so spaced out im online most of the time) let alone someone elses.

Others have told me to 'just relax' but im so used to tensing my muscles up to keep my joints in place that relaxing would feel weird. Also it's not as simple as just relaxing or taking a chill pill with chronic pain. Really wish i could get a hang of ordering the repeat scripts on time.

[Eloise]

Some pharmacies will do repeat collection and delivery services where they ring you up in 3 weeks and ask if you need all of your next repeat and sort it for you.

[trekster]

Cheers Eloise mines a type of footwear so dont know if they use that service nationwide or just where I am.

[Llaurin]

*Tabi* I think your 'explaining' might involve a couple of whacks with your sticks, so I'll pass, thanks...

At my class this week, a person I was paired with grimaced when my elbow cracked, a few minutes later my jaw cracked and he shuddered and said "Don't do that, it makes me feel sick." I explained I can't help it, it's a joint problem, and he rolled his eyes and said "Well sorry, but just don't do it again." Oh, sorry mate, I'll just stop, shall I?

[GreenLantern]

Two comments over the last couple of days have riled me a lot! one was 'you've only got bowl problems because you talk so much poop' she didn't say the word poop but I'm not sure if the other word will be allowed on here I wouldn't care but that comment came from a woman who is disabled herself! (not with HMS) but with something else, so I expected better from her

Another was something along the lines of calling me a liar because she has a 'friend' who has HMS and 'she doesn't have bowl problems as bad as you' yes because EVERYONE is affected the same way when it comes to HMS aren't they and again this comment came from someone with disabilities

[trekster]

to the ignorant folk in the world regarding HMS and it's related disabilities.

[cracker]

i know how u feel treckster they can be a right pain in the neck

[Blaadyblah]

At the table three feet behind me this lunchtime someone ranted about how 'the game was up' for a woman they'd seen waiting in a wheelchair who had eventually when access at the end of the queue became a problem managed the obstacle rapidly on foot before returning to the chair. It is still bugging me hours later, the rant and the general noises of agreement from those at the table at each stage made me feel sick and left a nasty taste in my mouth.

I was using my stick today rather than my wheelchair and I couldn't help but think 'these people know me, I'm sitting three feet away - I have many times climbed out of my chair to climb over something, or through a gap in this very room, they have to know I can hear them, right?'. I can't stand this idea that if you're ever able to do anything at all then you're some kind of fraud.

I am now feeling like a wimpy wussy bailing coward for not saying something but I didn't speak up, I hadn't the energy or inclination to get into it and to be honest was so disheartened I couldn't see the point.

I'll get over it, but I was slack-jawed just listening, I couldn't even filter it out as the speaker was loud!

[GreenLantern]

I can't stand this idea that if you're ever able to do anything at all then you're some kind of fraud.

Oh this annoys me so much too! I get told that because I can type I 'can't be that bad'