HIPS HELP

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

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Re: HIPS HELP

Postby Jill » Fri Apr 08, 2011 1:52 pm

Hi Tibisca,

I started using inserts in 3 weeks after hip started playing the first time, and their support feels much better in running shoes than in warm winter boots. Thanks god it's spring :)
Did you have a feeling that a ligament outside of the hip is overstretched or a bit out of place? I always get stuck when try to describe it to doctors.
What exercises do you do for hips?
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Re: HIPS HELP

Postby Tibisca » Fri Apr 08, 2011 7:23 pm

Hi Jill
I felt as though I needed to really stretch my hip!
After 2 years of being sent to various physios and MRI and ultrasound scans the latest thinking is that my glute medius was very weak so physio is about building that up. I have to do straight leg raises, Hip hitches(stand on the bottom stair on my bad leg and hitch my pelvis to a level position), and another where I lie on the floor on my good side in a straight line but bend 90 degrees at the knees and lift my foot up and down( this one is a killer) keeping my knees together.
Gosh I dont think I have explained that very well!
I am supposed to do 20 reps of each exercise every day, it took 2 months to be able to do it and I still have bad days when I just cant do 20 reps. I also do GP referral aqua fit sessions once a week part of which is water running where I concentrate on making sure my leg is tracking properly, given half a chance it will wobble off in all directions.
hope this helps, Tibisca
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Re: HIPS HELP

Postby Jill » Fri Apr 08, 2011 7:54 pm

Thank you! Glute medius is my weak spot too.
I found first 2 exercises on youtube, hip hitches look so easy on the videos and was much more tricky when I tried to do it by the mirror :lol:
Do you lift only foot or the calf too in the last one?
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Re: HIPS HELP

Postby Tibisca » Fri Apr 08, 2011 9:09 pm

Yes, I lift the calf as well, I could only manage 5 reps of that one for weeks.
The plan is that by building up the strength in that area, it will enable everything else to work perfectly in my hip.
That is until something else falls to bits :lol:
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Re: HIPS HELP

Postby Jill » Fri Apr 08, 2011 9:22 pm

Good plan. Good luck with it (don't let other joint fall apart while building perfect hips) and thanks again :D
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Re: Femeral Neck degeneration/arthritis

Postby Stone » Sun Apr 10, 2011 6:13 pm

lil_miffy wrote:Iv been told by my orthopaedic surgean that my recent hip xray shows 'pronounced wasting of the bilateral femeral neck'.
I had to ask a friend from church who is a hip nurse what it meant but basically it means the the part of the thighbone just below the end that makes the ball of the hip, is wasting away on BOTH legs.

That's not really arthritis - closer to osteoporosis. Bones get stronger with use and weaker with disuse so it's probably to be expected if you're increasingly using a wheelchair. Not sure what to advise other than the standard (for us) vitamin D + calcium to stop it from getting aggravated due to lack of nutrients :S

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Hip dislocations/subluxations

Postby RainbowsButterflies » Sun Feb 19, 2012 1:12 pm

I'm getting a crazy amount of subluxations/dislocations (I'm not 100% certain which of the two they would be classed as) in my left hip. Yesterday it was out 4 times, once in the morning, twice during the day and once when I had a bath (so I needed help to get out).

What can I do to reduce the amount it's coming out?
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New Hip Pain

Postby sinead5321 » Wed Apr 11, 2012 7:10 pm

For all of today, I have had sharp pain in my right hip. I have never had this sort of pain before and don't know what is wrong. I know is not dislocated as can still move it.

The pain is really bad and hurts when move the hip or when put weight on it, not too bad when sitting down but stills hurts a bit, and now have pain going down the leg. Has anyone has this pain before and what can it mean, is it related.

I have got a doctors appointment for Saturday to get it checked out

Hope it is nothing too bad, as I am about to run dance classes
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Re: HIPS HELP

Postby trekster » Thu Apr 12, 2012 12:28 am

If either of you use a wheelchair does it fit you properly? Does it have a solid base? Mine doesn't and
my hips are bending inwards when im wheeling around so i think this is the problem.
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HMS diagnosis 27/9/11

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Re: HIPS HELP

Postby sinead5321 » Thu Apr 12, 2012 5:14 am

I dont use a wheelchair and is the first time i have noticed this sort of pain
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Re: HIPS HELP

Postby cracker » Tue May 01, 2012 5:40 pm

i have bursitis in my right hip it real hurts sometimes :( :cry:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
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Funny feeling in hip joint

Postby Emzlou09 » Mon Oct 22, 2012 3:06 am

Hi all,
So I was at A&E earlier today after phoning up NHS direct and out of hours who convinced me to go and one of them was so worried they wanted to phone me an ambulance..
My hip feels out of place, it has felt like this for 10 hours now and it has done this before but has sort of clicked back in after funky leg movements and it usually takes around 10 minutes. I got a bit worried when it wouldn't seem to go back in so I phoned nhs direct etc and they advised me to go to A&E I begrudgingly agreed. I got assessed and then told I could go as she didn't think it was out of joint I had just tweaked it.. I was unhappy with this as I was sure my joint was subluxing as it feels exactly like how my shoulder feels when it subluxes. So she got the registrar to have a look and he sent me for an x-ray on my hip (scary radiation levels) and it came back that the only real difference was my left side (the one that feels out) is only different by .4mm compared to a bit on the other one. So he said it was in joint slightly different but I have probably just got a strain. He gave me some crutches (which have KILLED my hands) and sent me on my way.... I don't understand what is wrong with my hip! It feels out of place when I move it its uncomfortable and it feels as if there is a pulling which gets tight and a little painful. When I sit or lay down the front of my hip joint feels really funny.. On the previous occasions I have had this all I have had to do it is move it in a weird way and it will feel like it clicks back in place and I have no discomfort or pain afterwards and it feels exactly like the other occasions .. so how can it be a sprain. I am so convinced my hip is subluxing but the only difference on x-ray is 4mm... could that 4mm be making my hip feel out of place :/

Please help I am in so much discomfort and I can't use the crutches because they are just making my palms and fingers hurt like hell!
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Re: HIPS HELP

Postby Llaurin » Thu Jan 31, 2013 10:44 pm

Hi everyone, it's my first time in this part of the boards :bye:

I used to do a lot of walking but due to knee pain about two years ago I stopped. I still walk a lot, but mainly for shopping etc rather than proper 'determined' walking for fitness. Yesterday I had an OT appointment and it was a lovely day so instead of getting the bus, I walked from the centre of town to the hospital - about a mile, maybe a bit more, it took about 20 minutes at a good pace. By the time I got to the hospital, both my hips felt like someone had shoved a knife in the joint and was twisting. :cry: It wasn't muscular pain at all, it was definitely in the joint. I know my hips move too much and clunk an awful lot, but this is the first time I've had real definite pain in the joints (as opposed to a sort of dull ache when i've been overdoing it).

Does anyone else get that sort of thing?
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Re: HIPS HELP

Postby bendyneck » Fri Feb 01, 2013 5:35 pm

Llaurin,

I used to have have horrid hip pain when I walked any distances, I have discovered (that sounds easy) that my deep hip flexors are very tight whilst my gluteals just don't fire up at all. It really felt like something was being jabbed into the front of the groin. I am slowly getting better with the help of a lovely private osteopath, NHS physio, and Pilates. Everyone is different of course but I have found that some good hip flexor stretches combined with isolating and building up the gluteals has really helped. It has also taken the pressure off my lumbar back, though I still have to be very conscious and deliberate with every movement This has all been prescribed to me by professionals so please get yourself checked out properly before you try anything.

I have another theory about my own walking and this sounds like it might apply to you too as you only get the pain when you do 'determined' walking rather than the type of walking you do when you are shopping. I was the youngest of four children by five years and my older siblings and father were all very tall, I had to learn to walk very fast to keep up so developed a very long stride which no doubt overextended my knees and hips, I now try and consciously keep my strides a little shorter and don't 'flick' my knees out at the end of the stride. Hope this helps.
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Re: HIPS HELP

Postby JoSo » Fri Feb 01, 2013 7:17 pm

Emzlou09 - might it be that there is swelling in the joint that is pushing your hip out by that 4mm? if so some anti-inflamatories and sitting on an ice pack might well help! I hope its settled a bit, if not and you are still using the horrible crutches then go back and ask for ergonomic ones it will make a massive difference to your hands!

Llaurin (Debi) physio would definitely be my first stop, after that if you are still having problems you might want to try compression shorts, having the compression around my hips makes it much easier to remain upright! and helps support the muscles :)
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