It came out in conversation at the sham that is the JobCentre (who surprisingly now insist I reduce my hours after previously ordering me to increase my hours even though I was on the maximum, so I had to see the DEA but now I don't have to see the DEA, but maybe I do need to see the DEA and she'll ring me tomorrow when I'll be down the gym cos she was flustered and late picking the kids up from school oh oh oh..) that my GP doesn't know me from Adam and is totally disinterested and totally unsupportive. So I am ordered to go to the Citizens Advice Bureau to get them to sort me out a good, supportive, interested GP.
All the GPs I've seen in my life have been appalling and shouldn't be in the job. They have all been doddery old men (seemingly older than my parents who are mid-eighties), don't and won't speak English and most are hard of hearing despite their hearing aids. When I moved house 6 years ago, I took the opportunity to try and find a good GP and asked around but everyone said avoid theirs like the plague, so I plumped for the nearest dark, dingy, dank dungeon. 'My' GP absolutely doesn't want to do anything.
How does one find a GP who can be bothered, let alone one who might have any interest in HEDS and be supportive? I think the flustered JobCentre woman's point was that I need a GP who knows about me and my medical condition, which is fair enough but how do you find or spot one? (eg I offered my GP a leaflet and he just refused it.) When I moved house 6 years ago, I only moved across town and it took 10 weeks for my notes to move. So for 10 weeks I was effectively GP-less and I needed a form signing. The old GP wouldn't do it cos he didn't have the notes and the new GP wouldn't do it cos he didn't have the notes. So I don't want to have to sample them all to find out!
Do I have to go to the CAB to humour the useless mis-named JobCentre, or what can I tell them?
Joint group leader for South Central (Bucks, Oxon, Herts)