Pain Management - Bath/Stanmore/RNHRD

[Fiona-Jane]

hiya

posted this on facebook the other day and thought it was probably a good idea to tell people here too, in case some people who get hospital transport to stanmore missed it....


a word of warning to those who go to Stanmore hospital and get hospital transport- they've got a new criteria to see who qualifies. if you say you have a blue badge and you drive to your doctor (they ask a specific question about how you get to your doctor) then you dont qualify. in their eyes its irrelevant how far you can drive, or if someone drives you and cant take you to the appointment. i had to fight with her on the phone as i just cant drive far enough to get there. you'll need to get your physio or consultant to write a note on your file to state you have mitigating circumstances.... then you'll get transport. their new system is a tick box one...... if they tick that you've got the badge and get to the doctors by car then the system automatically refuses you and they cant alter it. b****y tick boxes.... hate them with a passion!!

my appointment is on tues so i had no chance to get my physio to add that note.... so i had to proper fight! i dont think she expected me to put up so much of a fight, i basically explained my symptoms in graphic detail (the ones that make driving hard) and what happens to them when i drive more than i comfortably can. and she asked me if i have any mobility problems... while i'd already stated i use a wheelchair so do they think we use them for fun? i told her i had 33 and would she like them all..... in a rather sarky tone. and it worked! she backed off and booked my transport!


just dont want anyone else getting the nasty shock that i did!

fi xx

[Englishgremlin1]

thanks for the heads up on this

[trekster]

i beginning to wonder if i have been referred. Do you get a letter in the post to say you are on a waiting list?
i appear to have been referred to the expert patients program, can i do both Stanmore and EPP?

[Rosie]

Yes, you can attend a clinic at Stanmore while doing an EPP

Rosie

[trekster]

Cheers Rosie. is there any point in ringing up Stanmore to make sure im on the waiting list?

[sheppeyescapee]

Finally finished up my blog of the third week of my stay at Stanmore. Took me long enough
http://sheppeyescapee-thisisme.blogspot ... eek-3.html

[juliepops]

Hi Sheppey just read your blog. Thanks for going to the trouble of producing it I've found it really helpful. I was supposed to be going in for 3 weeks next tues but am still waiting for a new date. Might give them a call cos think is will probs be Sept time and I don't want it clashing with my son's graduation!!! He's worked so hard for this whilst dealing with dyspraxia and ADHD. He now seems to showing symptoms of HMS too

Hopefully Stanmore will put me on track again being postponed has made me very low , which I didn't expect.

Thanks again for the blog
Julie

[Rosie]

Hi all

I was at Stanmore yesterday and the rehabilitaion ward is surrounded by fencing and workmen were visible so they are working on it at the moment.

Rosie

[sheppeyescapee]

That's good news Rosie

[trekster]

Recently confirmed im on the waiting list but I think it's been about 12 weeks since the letter was sent over.
Seriously considering changing my doctor then using the more bendy friendly doctor to pester Stanmore for me.

Well done for finishing your blog mate, didn't even look unfinished to me last time i looked but brains forgotten
what wasn't there before.

[Englishgremlin1]

glad to hea\r their is progress Rosie, I am hoping for wonders

[gila]

thanks again sheppey for the blog!
was v interested/intrigued by the "OT kitchen with Marta. The amount of times that I needed to be stopped because my posture was bad was incredible. Kept reaching for things behind me and going beyond normal (ROM)"

made me wonder whether it'd be poss/an idea for me to see stanmore OT as an outpatient to indeed learn to not do things the overextending bendy way...

and it made me want a wii- again- wanted it straight when it came out- but I find them rather expensive...
xxg

[sheppeyescapee]

I got one recently and it only cost £40! The amount of times I was told I was doing things wrong I lost count in the end

[juliepops]

I have wii fit at home & Dr Cohen told me to find out if local physio dept could see me to start me off with some gentle exercise. Local physio receptionist didn't know what I was talking about Tried to leave messages for the physio I saw last but after attempting 4 times still no luck. Dr Cohen told me not to use it without guidance so it looks like I'll have to wait for Stanmore after all. Mind you it is quite good fun watching my very uncoordinated hubby on the wii

Julie

[juliepops]

Got the BEST NEWS !!!
My new date for Stanmore is 30th July for 3 weeks . So excited
It was sooner than I thought it might be.

Anyone else out there who's going around same time ?


Julie