Pain Management - Bath/Stanmore/RNHRD

[star gazer]

sorry to hear that ciderpig, thats not the news you wanted to hear . My referral was delayed on my feedback letter from prof Grahame because my pots is not under control enough to do the 3 week stint, that was nearly a year ago and wont know really if I am considered under control until my autonomic review in November.
Did they make this decision from your pre assessment appointment? and have they actually said "no" to you going in? I dont really know what to suggest only that maybe your g.p could write a letter of support and that you manage to work without issues. Many people with severe pain and joint problems have depression because they are trying to cope with the problems that they have, but Obviously I dont know how it affects you and wouldnt want to give you advice that doesnt help, but I really hope that perhaps they can get around these issues and that you get the help you need.
take care
love star gazer x

[juliepops]

My 3 week rehabilitation has been postponed
It was supposed to start 8th May.
Apparently the rehab unit at Stanmore Hospital has had a major flood and needs to close for complete refurbishment.

So back to waiting again!!

I know it's no-one's fault but feeling a bit deflated

Oh well just have to hope the wait isn't too long.

Anyone else affected?

Julie

[sheppeyescapee]

It happened while I was there. Originally the estimate was 4-6 weeks but it looks like it will be a lot longer. The heating system in there was completely out of whack, it was either freezing cold or absolutely roasting hot. They noticed that there was a leaking radiator so they pulled up the floorboards and that's when they opened a big can of worms because they found a lot more than they bargained for. I hope they get it sorted soon but there was a lot of problems with the place, so although it will be a longer wait at least the place will be in a lot better condition for it

[RainbowsButterflies]

I spoke to them about it. Buiding work is scheduled until June, and that's if they finish on time. They're not doing any more pre-admission assessments at the moment as they have enough of a backlog. I have an appointment with Dr Cohn on April 2nd - I would imagine it will be at least a year before I get admitted now...

[Rosie]

Hi all

I got a letter today saying my rehabilitation team assessment for the progtamme is on June 15th, so 3 months to wait for that. But at least I got the letter!

Rosie

[trekster]

GP and myself got phone call to say i am *risky* as I am depressed and have OCD, doesn't stop me working 5 days a week though does it?? but I am high risk on a ward. completely given up all hope now, thats helped my depression no end

That doesn't seem fair, anyone with a long term health problem would be depressed and could have OCD.
is there anything your GP can give you to get the OCD and depression under control so you could access
stanmore?

[trekster]

As theres flood repairs happening at the moment, is there any point in me asking for a cancellation appointment?

[RainbowsButterflies]

Trekster - have you been referred to Dr C? I don't think the wait is too long to see her. Then she refers you on to the rehab team...

[juliepops]

Trying to be positive about my date being cancelled but finding it hard. I look after my father-in-law who has dementia and am trying to get a care package for him. It was all geared around me going into Stanmore. Sounds awful but I was looking forward to focusing on my health, cos I feel like my father-in-law is draining me. I love him to bits but no-one gets how hard living with HEDS can be. Sorry gone off topic but just feeling a bit low.

Hope they send me another date soon then at least I have a focus. I keep telling myself that at least it will be nicer if refurbished

Julie

[trekster]

Trekster - have you been referred to Dr C? I don't think the wait is too long to see her. Then she refers you on to the rehab team...

Unsure if you could PM me the number to ring up i will see who ive been referred to. Can i ask for a cancellation on here?

Ive been referred to muscular skeletal clinic as well, is that pain management?

[Silvertoes]

Hi trekster,
I had to have my appointment with dr Cohen, have a 4 month wait for preassessment and then when I was told in the letter that I was accepted for rehab I then asked and got a cancellation space.

[ciderpig122]

Ive just had the 'we wont be open until June' letter too, I must admit after being permitted to go now, im feeling abit anti. I cant believe when you are so low that its just an eternal wait for help.

[trekster]

hugs ciderpig ive got a muscular skeletal clinic soon, apparently it is new and i hope they can help me.

[RainbowsButterflies]

I've been referred for preasessment
And the pilot scheme they're running sounds good...

[trekster]

Good luck with that.