Insensitive comments

Social impact of HMS - To include work, home and play. Communicating to friends and family/Lifestyle adjustments. Any other topic that seems to apply.

Moderators: gila, Blaadyblah, Rosie, Retro

Re: Insensitive comments

Postby trekster » Wed Feb 15, 2012 1:47 am

Thats disgusting behaviour and you deserve a better doctor, see if you could complain to the practice manager or PALS.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1421
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

Re: Insensitive comments

Postby Tabi » Thu Feb 16, 2012 8:20 pm

"Have you grown oout of your aches and pains yet?"

Um. I'm almost 25, I think the time to "grow out of it" is LONG PAST.
Group Leader for EAST ANGLIAN BENDIES [find us on Facebook]

Me: "Well I've got this new thing"
Doctor: "..."
Me: "It's just EDS, isn't it!?"
Doctor: "..."
User avatar
Tabi
nut
 
Posts: 436
Joined: Mon Sep 22, 2008 10:37 am
Location: Norfolk

Re: Insensitive comments

Postby FunkyPhysicist » Thu Feb 16, 2012 8:36 pm

Thanks for the support trekster. It is nice to know that I am not just blowing everything out of proportion. Mum is taking me back tomorrow to see a different doc and complain. Safe to say she is gunning for them a bit and will definitely be coming in with me this time! :S
FunkyPhysicist
Member
 
Posts: 61
Joined: Thu Mar 11, 2010 1:31 pm
Location: London

Re: Insensitive comments

Postby carolyn » Fri Feb 17, 2012 2:24 am

This happens to me a lot. Sadly at our gp practice we don't get to see one consistant doctor which is a real annoyance. Plus I've had one to many visits that were a complete waste of my time. I feel like they really dont care. And I hate going so I only go in if I really need to but Most of the time in I'm and out in literally seconds. Fed up with them! Looking to move docs hopefully. In the middle of sorting it out with the help from the mother.
carolyn
Member
 
Posts: 34
Joined: Thu Apr 14, 2011 6:31 pm
Location: Liverpool, UK

Re: Insensitive comments

Postby trekster » Fri Feb 17, 2012 4:14 am

NP FP, my physio told me that my physio exercises would help with the pains in my legs. Guess what caused them? yep the physio exercises!
I try and do them in the pool now and if it feels OK then do for the rest of the week.

Another 1 is my mum is embarrassed to be around me with the wheelchair, well shes going to the rhemy appointment I hope :pray: im just worried
he'll have a problem with my wheelchair as well and she wont stop putting pressure on me to avoid using it. :shock:

Tabi im trying to think of a clever response to shut them up.... probably 'no and guess what their not growing pains!'
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1421
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

Re: Insensitive comments

Postby RainbowsButterflies » Fri Feb 17, 2012 11:34 am

Not quite an insensitive comment, but I had a horrible experience at the supermarket yesterday. I got to the checkout and the man asked if I wanted my bags packing. I said no thank you (because I need to know where things are and the bags always get overpacked), but while I was still unloading the trolley, he started packing bags anyway. He put in far too much for me to lift to I had to half unpack them. He's then practically throwing the food at me so I had to ask him to slow down. First he starts drumming his fingers impatiently, then I'm getting funny looks and he's whispering comments to the customer behind and the two of them are laughing and looking at me...

I had DS in the trolley, DD walking, and didn't bother with my sticks because a) there would have been no where to put them and b) I had the trolley to lean on. I was walking that badly by the time I got out that an old man actually asked me if I wanted any help, but by that time I was only a few steps from the car - I thought that was lovely of him, but why couldn't the guy at the checkout recognise that just because someone isn't in a wheelchair doesn't mean that they don't have difficulties!
K x
AS, HEDS, probable POTS, IBS, chronic pain syndrome, chronic migraine with perpetual aura, A&D, atopy
User avatar
RainbowsButterflies
Member
 
Posts: 97
Joined: Thu Sep 15, 2011 10:15 am

Re: Insensitive comments

Postby Superstottie » Fri Feb 17, 2012 1:09 pm

RainbowButterflies - do you still have your receipt? If so I would write a complaint to the store mentioning the details from the receipt such as till number, date and time, some of them even give the name of the person serving you. He should not be allowed to get away with treating anyone like that! You may even get a few vouchers to help out with the cost of your next shop, but should at least get an apology, I would demand that the cashier himself writes a personal apology to you, just to make it sink in a bit more. I would mention that not all disabilities as obvious on the outside, and that you expect people working in the customer service industry to have consideration for people, especially those with disabilities or difficulties.
Finally diagnosed March 2011 after 20 years of hypochondria!!!
User avatar
Superstottie
addict
 
Posts: 618
Joined: Fri Mar 04, 2011 11:03 pm
Location: Cumbria

Re: Insensitive comments

Postby BendyBoff » Sat Feb 18, 2012 6:25 pm

This happened to my sister the other day.

She went to the local minor injury unit because she had hurt her ankle while walking downstairs. When the nurse found out she was a student she started being less attentive and accused Helen of being drunk (she wasn't), especially when she couldn't explain exactly how she did it. When she told the nurse that she has HMS the nurse just ignored her and wouldn't offer any treatment because Helen must have been drunk when she fell. Helen then had to go to the A and E on the other side of the city and wait for hours. luckily it wasn't broken but Helen kind of wishes it was just to make her upcoming compliant stronger.

Can't believe the cheek of some people and just because you may not approve of students getting drunk if you're job is a nurse you have to get on and treat them. Plus, treating students differently is discrimination. The nurse happened to be black and if she had been treated differently because of her skin colour there would have been a huge fuss made.
xxx
Exeter, East and Mid Devon Group Leader - please get in touch for more information!
BendyBoff
enthusiast
 
Posts: 295
Joined: Tue Jul 14, 2009 7:14 pm
Location: Exeter

Re: Insensitive comments

Postby trekster » Sun Feb 19, 2012 4:18 am

I was hoping to get a personal apology from some folk who really upset me in my volunteer work last year. It has been going on a year
now and I just wish they would admit they've let me down and made a mistake. They agree to allow me to help rewrite their volunteer
policy but wont apologise and admit that I should get my expenses back in full! I've got some money back but hope to get the full lot.

I've had bus drivers who've pulled away when the floor was wet I was walking and had a disabled persons pass. When ive tried to talk
to them they just kept nodding at me instead of apologising so I reported him, no idea whether he really got a telling off or not.

I had another driver who pulled away before I got the chance to sit down then claimed 'he had given me enough time to sit down!'
Also told me to report him anyway so I did.

Apart from not telling people you're a student I dont know what to advise about the drunk excuses that A&E staff come up with.
Sorry meds are spacing me out.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1421
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

Re: Insensitive comments

Postby trekster » Sun Feb 26, 2012 1:34 am

Today i was due to get assistance to board the train going back to Southampton. Normally the
ramp goes down and staff board me onto the train, this time however she just shouted at me
'come on this ramp is for your benefit you know', i replied that 'staff are supposed to load me
onto the train' so she pushed me on the train and put my wheelchair where it was blocking the
galley. i had to move my wheels.

i was also annoyed that she didn't seem bothered by other passengers climbing up my ramp
(without any good reason to use it) and getting in the way. i shouted at them 'you trying to
break the ramp so i cant use it?' then they stopped so we could get on.

i was upset because i felt like the staff expected my friend who looks disabled to push me
up a ramp (which I was told 'I wasn't on the ramp properly' considering im not used to or
trained to use wheelchair ramps no wonder I wasn't on it properly. This was booked assistance
which clearly says 'Assistance at station for boarding, Wheelchair user requiring ramps at origin station'.
If i didn't need help using the ramps it wouldn't have put the 'assistance at station for boarding' part!

Going to ring up and complain tomorrow as ive never had staff expect me and my friend to get on the train
using the ramps.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1421
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

Re: Insensitive comments

Postby madmum » Sun Feb 26, 2012 10:15 am

Assistance can be very hit and miss. I have even had them fail to turn up or expect me to carry a suitcase when being pushed.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2308
Joined: Wed Feb 17, 2010 11:20 pm

Re: Insensitive comments

Postby Purplesheep » Tue Feb 28, 2012 2:41 pm

I had a lovely encounter this morning when trying to park in my usual spot - an accessible bay fairly close to where my office is. Today, there were two delivery vans right next to the bay and people were unloading stuff, and empty crates had been stacked all over the parking bay. A guy, who by his name badge was a member of staff rather than a delivery person, came over and I explained that I needed to park in the space because I was disabled. He told me to walk to the security office and complain there. I said even if I had the time, I can't just walk there, since I'm disabled. He replied "If you're disabled, then you can wait". I was shocked and told him that I couldn't wait because I needed to go to work, and that yes, disabled people can work too. He said "Well, what do you think these men are doing? They are working." I was basically shouting at him at this point and told him that they could do their delivery a bit further down, whereas I have no choice as to where I park". The guy just walked off and finally told the people to clear the space - I had to wait another 5 minutes, while getting stared at by some of the staff members outside.

Thankfully, I remembered to take a picture on my phone of the crates in the accessible bay, and also have previous pictures of delivery vans parking in blue badge spaces. There's definitely going to be a complaint, since my employer keeps on going on about how diverse and equality-friendly they are, just need to find out who the right department to complaint to is. Hopefully the "Disabled people can wait" guy will get into serious trouble :cussing:
User avatar
Purplesheep
Member
 
Posts: 185
Joined: Fri Apr 02, 2010 3:13 pm
Location: Coventry, UK

Re: Insensitive comments

Postby trekster » Tue Feb 28, 2012 4:43 pm

:wall: to the 'disabled people can wait' idiot.

There was an AA van parked in a disabled bay helping a disabled driver with a car problem.
Are they allowed to legally do that? The car park is very small less than 10 spaces for blue
badgers and we had to park in a less accessible place get the wheelchair off the back seat
(my home help cant fit it in his boot) so we could shop. On the way back he had to pull out
park on the other side of the lane and then i had to wait whilst he put my wheelchair in his
car.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1421
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

Re: Insensitive comments

Postby Jess » Tue Feb 28, 2012 7:09 pm

Trester: yes they can park in the disabled space if it is safer for them to work. ESP if there is 10 spaces.
I feel like a bowl of Rice Cripsies!! I'm snap, crackling, popping everywhere!

Nottinghamshire & Warwickshire Support Group Co-ordinator
Jess
addict
 
Posts: 604
Joined: Mon Feb 12, 2007 12:06 pm

Re: Insensitive comments

Postby trekster » Tue Feb 28, 2012 8:46 pm

What i didn't mention is when we arrived there were none, i dont know about it being safer for him to work
but he might have blocked a few disabled passengers leaving the car park but only temporary.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
trekster
Carpal tunnel
 
Posts: 1421
Joined: Wed Aug 17, 2011 9:45 pm
Location: near Bristol

PreviousNext

Return to Social Issues - Work, home and play.

Who is online

Users browsing this forum: No registered users and 3 guests