Pain Management - Bath/Stanmore/RNHRD

Please do not mention specific dosages in this section.
Issues relating to pain management - from the latest drug therapies and combinations to pain clinics and cognitive behavioural therapies.

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Re: Pain Management - Bath/Stanmore/RNHRD

Postby juliepops » Mon Feb 20, 2012 10:25 am

Hi Sheppey
enjoyed reading your blog. I'm due to do the rehabilitation in May so it was really useful and put my mind at rest a bit as I tend to suffer with fear of the unknown!!
Thanks Julie
HMS(diagnosed 2005), asthma, IBS, fibromyalgia/ME - EDS3 and scoliosis diagnosed 2011
Son (20) hypermobile & recently diagnosed with Dyspraxia
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby trekster » Mon Feb 20, 2012 5:45 pm

My rhemy isnt referring me to stanmore but i hope my GP will.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby ciderpig122 » Mon Feb 20, 2012 8:05 pm

thanks me dear thats very helpful, and also may explain why they called me today to say my appointment location has changd!!! the leak!!! haha :mrgreen:
EDS type 3, Fibromyalgia, suspected PoTS, OCD, asthma, PTSD, Periodic limb movement disorder & raynauds.
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby sheppeyescapee » Mon Feb 20, 2012 8:34 pm

Yeah they had a leak in the mens wing and they normally hold the pre-assessments and follow ups in the male conservatories. All the floorboards are being pulled up, new heating put in, filling in the floor with concrete and putting in new flooring. Was told that the male wing will be shut for 6 weeks so no new male patients during that time, not sure on the situation on the womens side with regards to new patients. I know that there are no new week 1s starting this week.
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby Englishgremlin1 » Mon Feb 20, 2012 11:12 pm

that is bad news - must be chaos for you - guess that will delay my chance but mnore importantly how are you coping?
If we can crack joints we can crack systems

Male diagnosed with Hypermobile EDS November 06.
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby sheppeyescapee » Mon Feb 20, 2012 11:25 pm

So-so mate. A lot of changes so it is quite stressful. Got a new physio this week and we have pretty much ruled out walking in the long term, just working on making it safe to transfer and stabilise my shoulders to use the manual chair. At least they have done the orthotics referral now so I should see someone before I leave, my ankles are too screwed at the moment to hold me up unfortunately :roll: Managed to sleep so well on Saturday night that I woke up with both shoulders and ankles dislocated was horrible as I couldn't put anything back myself because my arms were floppy and useless :boohoo: We are in our own rooms now though so hopefully the snoring wont keep me awake :dance:
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby trekster » Tue Feb 21, 2012 12:31 am

Hope things get better for you mate.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby Englishgremlin1 » Tue Feb 21, 2012 9:00 am

They told me about not wal;lking without aids again, was tough but you will get through that downer and see positives.Hope you stop letting the joints pop out
If we can crack joints we can crack systems

Male diagnosed with Hypermobile EDS November 06.
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby RainbowsButterflies » Thu Feb 23, 2012 3:13 pm

I've just made my first appointment - 2nd April...
I hope I'm going to be suitable for the rehab programme.

What do they normally do in the first appt? Do they give you any useful advice? How long is the wait from there?
K x
AS, HEDS, probable POTS, IBS, chronic pain syndrome, chronic migraine with perpetual aura, A&D, atopy
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby juliepops » Thu Feb 23, 2012 3:34 pm

Hi Rainbowsbutterflies
My first appt was in sept and my preassessment appt was beg of dec. The first appt with Dr C was a really positive experience for me. Very thorough and informative. I was lucky enough to then go to preassessment and told 1 wk before xmas that I had made it to the waiting list! I was told my date beg Jan. My date to go in is 8th May so it has taken a while from start to finish but hopefully worth the wait. Like you I wasn't sure if I was suitable so try to keep positive :)

Dr c also gave me some ideas of goals to work on while I was waiting and helped me feel that i was achieving something whilst waiting.

Good luck
Julie
HMS(diagnosed 2005), asthma, IBS, fibromyalgia/ME - EDS3 and scoliosis diagnosed 2011
Son (20) hypermobile & recently diagnosed with Dyspraxia
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby RainbowsButterflies » Thu Feb 23, 2012 8:45 pm

I was hoping the 8 months was from referral not from the first appointment - that takes me to December. Oh well, at least it's a step in the right direction!
K x
AS, HEDS, probable POTS, IBS, chronic pain syndrome, chronic migraine with perpetual aura, A&D, atopy
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby Rosie » Thu Feb 23, 2012 10:15 pm

Hiya

I saw Dr Cohen last month for referral to the rehab program. She told me it would be about 8 months total from hrt referral to the inpatient stay - aproximately 4 months to the assessment appointment and then another 4 months to the course. They are hoping to speed things up soon as the demand is so high.

Hope this helps

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby sheppeyescapee » Fri Feb 24, 2012 12:27 pm

Am being discharged today. AFAIK they are still working on the mens wing and so there might be a wait to get in on that side. I'm not sure what they are doing on the womens side but the nurse was telling me that the waiting list for womens side is 6 months between pre-assessment and coming in.
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby ciderpig122 » Mon Feb 27, 2012 11:51 am

I saw Dr Cohen on 5th Jan 2012, my Pre assesment was on 24th Feb 2012 (last friday) and ive got a 2 week wait for a letter to see if i am approved or not, then up to a 4 month wait i believe to be admitted if approved.

I must say it seems very good, they were very honest and upfront about what they do too, very impressed and sat with my fingers crossed for the next 2 weeks now :D
EDS type 3, Fibromyalgia, suspected PoTS, OCD, asthma, PTSD, Periodic limb movement disorder & raynauds.
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Re: Pain Management - Bath/Stanmore/RNHRD

Postby ciderpig122 » Mon Mar 05, 2012 3:17 pm

GP and myself got phone call to say i am *risky* as I am depressed and have OCD, doesnt stop me working 5 days a week though does it?? but I am high risk on a ward. completley given up all hope now, thats helped my depression no end :shock:
EDS type 3, Fibromyalgia, suspected PoTS, OCD, asthma, PTSD, Periodic limb movement disorder & raynauds.
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