I could be wrong, but I'm increasingly sceptical there is such a thing as 'just fibro'. Everyone I've ever met with fibro either has an additional diagnosis (HMS, RA, lupus etc) or seems to end up getting another diagnosis shortly afterwards. I'm beginning to think that the rheumatologist who told me, way back when, that fibromyalgia was really just a symptom of something else, with the 'something' as yet undiagnosed, was right. Although this doesn't seem to be a popular view with either patients or doctors.
And just to cap it all, a friend who has allegedly had fibro for 20 years, has just found out she has lupus, and her fatigue is due to early-stage kidney failure!
I don't think I have lupus, or any of the other diseases mistaken for fibro (all of which I've been tested for), but I do have fibro secondary to HMS (HEDS). I also have autoimmune problems, a bone disease and metabolic problems, so I'm a pretty complex case. One doctor told me that its almost par for the course for people with complex medical problems to have fibro.
At first, the diagnosis was useful (got me my Blue Badge, for instance), but now it's an irritant. My new GP keeps referring to fibro when I'm trying to talk to him about HMS problems. He doesn't claim to be an expert on HMS, but he's been good, so far, at finding out more about it. But still, he seems to have a mental block. Maybe he's more comfortable treating someone for fibro than some weird, unheard of, connective tissue disorder?
Not that either condition is curable. It's just that, for example, I complained of shoulder pain. My GP says "Aches and pains are common with fibro". I say "It's not an ache and pain, its the result of injury - I subluxed it in bed the other day, and almost dislocated it! The muscle is all bruised and I've pulled my ligaments". "Oh dear," he says, "Sounds painful". Argh! Yes, there's nothing he can do, but it is so irritating the assumption that my pains are not related to actual injury. Most of my pain is because I've twisted something, tripped, banged something, subluxed a joint, dislocated a joint (usually fingers or toes) and generally battered my tendons. Call it fibromyalgia if you like, but the reality is, I'm injury-prone.