Hi everyone, this is my first post of 2012, been quite busy so happy new year to you all
Feeling very low at the moment! Just to run over a few things, was diagnosed with HMS in 2008 by a local physio referred to by my doc, went to a few physio sessions then everything stopped. Doc has prescribed me with Co-Codamol since then basically. Visited my GP around September 2011 as I feel tablets aren't helping me and wanted to look at other alternatives to help me manage better basically. He actually said to me that he didn't know that I had been diagnosed with HMS, that he was giving me tablets for "back pain" (for three years, bearing in mind I was only 16 when diagnosed) and that no report has ever been sent over to say I have HMS.
After me being left seriously red faced, he then stated, you can't have Hypermobility as it doesn't cause pain..
I was then referred to a rheumatologist at my local hospital and was back at the start getting a formal diagnosis, I was 100% sure it was HMS I've been suffering with and the rheumy confirmed this and sent the report over to my dilusional GP and that it was now in my GP's hands. Now since then, which was before Christmas, I've been contacted my a different GP from my surgery, (wasn't happy with this but then again I'm guessing my own GP is too embarrased to face me after completely doubting me) who stated she had seen the report and what would I like her to do next... me getting more frustrated said well what do you recommend you are the DOCTOR. She then said she'd look at physio and acupuncture and get in touch, basically stating there's nothing she can do.
Now that was well over two months, maybe three months ago and I've heard nothing from my doctors however they still keep signing my prescription every two weeks for my painkillers. I'm getting soooo annoyed with the way they're dealing with this, I don't even feel like me confronting them will help as they always seem to find a way to make out I'm not suffering and that HMS isn't a big thing and that there's nothing else they can do. I've seen many of you on here talking about specialist clinics which I'm thinking about researching, I'm even starting to doubt myself now after hearing the doctors but deep down I know my Hypermobility is an issue and something needs doing about.
Can any of you recommend what to do next, I'm literally tearing my hair out, I feel so helpless but really want to speak to a professional that does understand and can help, I'm now certain my GP can't unfortunately
Sorry for ranting everyone, but only you guys understand!
Thanks so much, T x