Hi, I have 2 children, both with undiagnosed HMS. Both were hard to potty train, but my eldest at 7 is still having problems. His hypermobility is mild, but recognised by a physio, and the biggest problem is in his hips. They are strengthening with physio, but since having the physio his daytime bladder control seems to have tailed off (it's never been good, it's not at all unusualy to have a little dribble before he actually realises he needs a wee) and he's had 3 full accidents in the last week. He doesn't seem to notice at all that he's had an accident, doesn't feel the wetness on his skin from the clothes. He's being seen by the school nurse for bedwetting, but until recently I didn't realise there was a link between HMS and bladder problems. I am now in a bit of a quandry, the nurses deal with general bedwetting around here, but *is* this general bedwetting? Should I be taking him back to the docs and asking them to help too, or continue with the school nurse route, trying the bed alarms etc? I know they only deal with 'standard' cases.
I have more questions about my other son, and possibly me too (I also have HMS) so I am sure I will be back soon, but have to shoot off now. TIA