Thought I'd update you with my 'Official Diagnosis' from Big Prof. G. (Everytime I write that I've seen him, I feel SO lucky!
I have positive Walker-Murdoch wrist & Steinberg thumb signs. I'm 5'7", my arm span is 5', and I've always considered my back to be disproportionately long (though I've not measured my 'Upper/lower segment ratio' thing, but if it was 'Marfanoid' I'd eat my hat). Erm. Ribs, my ribs are 'slightly concave', but nothing like those pidgeon chest photos that are about! And heart, I have had some very minor POTS issues, with palpitations, but... they seem so mild to me, so nothingy in the scheme of things, Prof G wanted to send me to Prof Mathias for tests, but I said I'd rather not - why, when there's no way I'd want meds or anything? I just can't imagine that there's anything wrong with my heart... it's a good heart, just needs a little more exercise! I'm sure I'd be anxious about it if it weren't!
If you know me, you know it's true
Anyway... my diagnosis is for - Benign Joint Hypermobility Syndrome (equivalent to HEDS, formerly known as EDS type III), classified as an incomplete Marfanoid Habitus.
So what does the incomplete Marfans thing actually mean to me...? Not a lot really, as nothing has changed, I just have officially spideryly fingers