The specialist thinking these days is that EDS-H = HMS = EDS3 = BJHS etc etc. However, many medics are behind on this and still give out 'old fashioned' informatiom like EDS has skin involvement, HMS doesn't. HMS/EDS-H affects us all differently so some of us have skin involvement and some don't. The hypermobility type of EDS does not typically have very stretchy skin, this is usually associated with other types (although it is not always clear cut). Like wise some of us have digvestive tract problems, and some don't. If it is casuing you problems then it is worth getting it investigated, it really is up to you. I coped with IBS for over twenty years with a combination of relaxation techniques (for stress induced type) and lifestyle until about 3 years ago when hubby was seriously ill, at which point the doc put me on anti-spasmodics which have helped. It is not really surprising that we can have problesm with body parts other than joints. HMS/EDS-H is a condition that affects the collagen in our bodies, and many body tissues contain collagen.
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!