Any other Americans on here?

[shellygirl]

Hi, I am new here. EDS hypermobility type and fibromyalgia diagnosed about two years ago. Although my husband also has fibromyalgia, I have never met anyone else with EDS. It is nice to have contact with others like me as most people don't understand what I am going through. Any other Americans out there?

[Beth]

Hi Shellygirl,
Welcome to the forum! My family is from Ohio and I know there are a few other Americans on here as well... This is a great place to learn and be with others who really understand EDS. The folks are very welcoming and helpful!

Beth

[realrosie]

Hi Shelly! Welcome to the HMSA. I am an American, I'm in Minnesota. My diagnosis was just 2 weeks ago, but I'm 52 and boy o boy I have had many health problems because of my EDS.Hope! That's it! Hope! I have hope again,hope that we can connect through this ! That we can support one another! Hope that Drs. will treat us with respect and allow us to retain dignity. Bless you! Great big hug!

[MMorley01]

Hi there,

I am new to the forum, but I too an am American; I currently live in Scotland. Always nice to hear from home

[shellygirl]

It's nice to "meet" you guys. Thanks for replying. It's easy to feel alone sometimes.

[paw]

I am from the USA too. I don't know any bendies other than my family and it's not well understood by a lot of doctors. I personally think there are a lot more of us than anyone suspects but they were never diagnosed.

[shellygirl]

I agree with you, paw, it seems underdiagnosed and many doctors have barely heard of it. I have one uncle who seems to have it, but never diagnosed, and I have not talked to him since I was a kid. I was just diagnosed in my thirties. Prior to that, I never thought anything was wrong with me (although I was probably the most flexible kid in my gymnastics class). I think my mom may have it to a much lesser degree and it does not bother her much. I wish there was something we could do to increase awareness.

[carob914]

i see that this post is almost a year old but i figured since i was wondering the same thing id leave a reply anyway, im in pennsylvania and was diagnosed with hms maybe 8 months ago but have been dealing with my problems for as long as i can remeber and there only getting worse with each passing moment. im 23 and it seems to be that because of my age doctors treat me like a drug addict looking to score and it dosent help that the few who have tried to help dont understand this condition, i had to take my hms book and printed out articles for my doctor just so she had an idea. if there is anybody in my area that could maybe point me to a good knowledgable doctor it would be appreciated