Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....
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Absolutely Definetley YES!!! I was a very very thinstick insect and now well no..........I struggle terribly with weight and I eat VERY healthy and I dont drink or smoke...
If you want to know anymore PM me.
yes, i was tiny skinny thing and at 11/12 started to put on loads of weight but was never a major junk food eater or sweets etc, even now not got a great appetite. did have food allergies diagnosed few years ago, but gluten din't appear
I was really, really thin until I was about 17, then for no apparent reason I started to gain weight rapidly. I'm now 19 and not overly heavy, but put weight on so easily. x
- Posts: 212
- Joined: Thu Mar 27, 2008 9:28 pm
- Location: Cambridgeshire/Essex, UK
i was really skinny a cheerleader always a size 10 then i dislocated knee at about 12 then i went up to a size 16 within a 6 month period i lost itagin to a size 14 never been smaller than that again i am currently a size 18
and i hate myself but nothing seems to work for me
Katie Hollingsworth Diagnosed with Hypermobility Syndrome, EDS, POTS, Fibromyalgia, Chronic Fatigue Syndrome on 03/03/2011: I also have IBS,Ashtma,Depression,Anaphalaxis to fleas,wasps,and bees.
I am a right catch lol looking forward to your reply :O)
- Posts: 44
- Joined: Thu Aug 12, 2010 7:06 pm
- Location: Milton Keynes
I was really, really skinny as a girl, put on weight in my teens and due to one of my sisters informing me I was fat, I always considered I was. Looking back at photos, I wsan't,but I was certainly different from the skinny thing I was before! but I have really gained weight with each child, putting on most when I was breastfeeding them.
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
- Posts: 3298
- Joined: Fri Jun 24, 2005 8:58 pm
- Location: Brighton area
I was a big baby, a skinny kid and then an overweight pre-teen/teenager. Didn't seem to matter what I ate. Have had weight issues ever since.
HEDS, Autonomic Dysfunction, POTS, ME, Fibromyalgia, IBS, Icepick Headaches, Migraineous arm, Blepharitis and a cuddly toy.
- Posts: 323
- Joined: Mon Aug 03, 2009 3:57 pm
- Location: Northern Ireland
Well thank goodness.....not just me then!!
I was a fat baby, then a ridiculously skinny teenager, then when I got to my twenties I started to get bigger again!! I managed to lose 5 stone, then I out it all back on and another stone on top, then I lost 2 stone, then I gained another stone........and so the weight saga continues!!!!!
- Posts: 152
- Joined: Fri Nov 12, 2010 5:02 pm
- Location: Eastbourne, East Sussex
i was very thin as a child, but come puberty - boom - all this weight appears
I have only recently been diagnosed as being hypermobile, but was given a diagnosis of lipoedema (also spelt lipodema and lipedema) in 2009
- New User
- Posts: 10
- Joined: Sun May 29, 2011 4:48 pm
Yes...my weight has always been an issue.
I was and average size for most of my early childhood, at around 10 I hit puberty and my weight rocketed. No change in diet,exercise etc.
At about 15ish I wasn't eating the best diet, complete chocoholic and lived on chocolate, peanut butter sandwiches and crisps. this was after years of consciously eating really well and not haivng any noticable weight loss. I dropped down to 9.5 stone and was fairly skiny, it wasn't a gradual weight loss either...seemed to go in about 3 weeks but I had such a saggy belly (a bit like the baby pouch, which has just gotten bigger over the years). I thenh went on the pill and had a gradual weight gain over about 1.5 years to 11 stone,which I stayed at for quite a few years. I was really out of proportion though, was a size 8-10 round the waist, a 12round the hips and a 14-16 round the chest.
ThenI fell pregnant at 20, lost 3 stone in the first 4 months and then put on 5 stone after (14 stone). managed to lose1 stone over the next 3 yearss til I fellpregnant again and had the same lost 3 then out on 5...that was me up to 15 stone and a size 18. I've trieda few different diets and never lost more than about 8lbs. 33 now and REALLY struggling with weightloss after the birth of my 3rd child. I was refered to dietician during this pregnancy and kept my weight fairly stable,only put on a stone and was 2 stone down after the birth (15 stone) but it's gradually crept back up again depite reducing calories. I'm on 1450 calories a day which should be enough to lose1lba week...that's what I'm losing in a month though.
wonder if HMS has an effect on metabolism and because hormone changes can effect HMS that's why all the weight problems have been when there has been something in my life to change my hormone levels? Puberty,going on the pill, being pregnant?
- Posts: 69
- Joined: Thu May 19, 2011 11:01 am
- Location: FIFE
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