My gp has pulled the final straw
I ordered my repeat perscription with boots who pick it up and deliver my meds to my flat. my main painkiller had been reduced by gp without telling me from 2 tablets 4 times a day to just 1 at night! the dose i was on only managed my pain on average days and was useless on bad days so i was dumbfounded how he expected just 1 tablet at night to have any effect.
I phoned the surgery to find out what was going on but my gp wasnt there so the duty gp spoke to me instead. He said there was nothing on my notes to explain why my dose had changed. He said that my rheumatologist has said in his letter to my gp what minimum dose I can manage on (which is what i was on). He also said that although they don't like people being on the pain killer long term, specially younger people, the level and type of rheumy problems I have mean that i couldnt be expected to function on anything other than a decent dose of strong pain medication.
He changed my dose back up and even increased it if I need it.
I was so scared before I phoned that i woulndt be able to get it changed back again. If i was only allowed one tablet a day there is no way i could function the level i do now (which often isnt brilliant at the moment). Im still hopeful the funding can be found for the art job Iv been offered but without decent pain managment theres no way i could work.
Im going to see the gp who was on duty when i phoned when i next need to go to gp. Iv seen him in the past for none-eds stuff but he seems much more understanding of pain and complex issues from what he said on the phone.
And my orthapaedic dr has cancelled my appointment with him 3 times now, once i didnt find out till i turned up for the appointment, and the rescheduled appointment i got a phone call 5mins before I left the house to go to the appt to say he had cancelled me again.
And my physio reffered me to the pain clinic over 6months ago and i still havent heard anything so whether iv actually been reffered i dont know. Don't move to my town if you have eds and want and easy wide when it comes to healthcare lol.