About the Manchester clinic, Dr H is very professional and polite - and not chilly with it like some I've met.
I was diagnosed with EDS hypermobility by her last November, and immediately referred to physiotherapy and occupational therapy at Manchester Royal Infirmary, who have also been really great for me - the physio decided that actual physiotherapy would do more harm than good and set me onto a course of hydrotherapy in their pool. It's already doing wonders for my general health and stability after only four weekly sessions. They're planning to give me the six weeks everyone's allowed at one time, then reassess me to see if it's helping - which, they already know it is, so it's just a necessary formality - and give me another six-week course, and so on. I'm losing some of my excess weight through it, which is also helpful because I have a history of bulimia and it's helping me get healthier in that sense too.
My occupational therapist at Manchester, S.B., is brilliant. She's observed my range of movement insofar as I move during our sessions, and determined ways to help me based on that. I'm not allowed to lean forward past 45 degrees because my lumbar vertebrae try to subluxate, and try not to cross my legs because that tries to pull my hip out. She's given me a grab claw to aid in that, a couple of devices to aid with putting on my socks without dislocating my hip, a wrist brace to use when I'm using my walking stick so my wrist doesn't try to dislocate, something good to wrap one of my ankles, and a good deal of verbal help in figuring out what I can and can't do. The physiotherapist doing my hydrotherapy's really good, too.
In short, though it may have caused you some distress to get pushed onto her, I strongly recommend seeing Dr H if you can get an appointment with her - for me it was like everything finally started getting a move on with my treatment after I saw her.
25yo woman; diagnosis: 10/02: bipolar (R-C NOS); 01/08 - HMS; 12/08 - FMS (probable); 11/10: lumbar & thoracic scoliosis, HEDS, secondary FMS & IBS.
LRC/HRM indefinite award as of January '10.
Currently in hydrotherapy & on heavy opiates.