Long Term Conditions Alliance for Scotland (LTCAS)

[barkingmad]

Dear All,

If there is a HMSA group leader or member who would like to attend the free consultation days please do let me know.

TC Donna

Dear colleague

Tuesday 22 March 2011
Public Service Reform and Long Term Conditions: Working with people; building communities
Perth Concert Hall
There is growing consensus that public services need to change radically in response to the dual challenges of increasing demand and shrinking budgets.
Join us to debate how asset-based approaches – such as self management, personalisation, recovery and co-production – can inform a vision for sustainable, high quality services that harness the capacity of Scotland’s people and communities.
Confirmed speakers include:
• Dr Harry Burns, Chief Medical Officer for Scotland
• Martin Sime, Chief Executive, Scottish Council for Voluntary Organisations

This conference has been designed to be of interest to; People living with long term conditions, unpaid carers, local and national decision makers and service planners from the third, statutory and private sectors.

The event starts at 9.45am for registration and closes at 4.30pm. Complete and return the attached booking form to register for this event. Book by Friday 14 January 2011 to qualify for the early bird discount!!!

Please pass this e-mail round your colleagues and networks. We would be delighted to have as many organisations/ individuals represented as possible at our second annual conference and AGM!

With best wishes
Justine

Justine Duncan
Events and Fundraising Officer
Long Term Conditions Alliance Scotland (LTCAS)
349 Bath Street
Glasgow G2 4AA
Tel: 0141 404 0231 FAX: 0141 246 0348
Charity No. SC 037475
Company No. 307731
www.ltcas.org.uk
LTCAS upcoming events -2011
Monday 17 January Meet the Leaders - Nicola Sturgeon, Deputy Leader of the SNP (LTCAS members only)
Thursday 3 February Living with Multiple Conditions: Issues, Challenges and Solutions
Tuesday 22 March LTCAS Annual Conference and AGM

[barkingmad]

Annual Conference Information Tuesday 22 March 2011.
There is growing consensus that public services need to change radically in response to the dual challenges of increasing demand and shrinking budgets.
Join us to debate how asset-based approaches – such as self management, personalisation, recovery and co-production – can inform a vision for sustainable, high quality services that harness the capacity of Scotland’s people and communities.
Confirmed speakers include:
• Dr Harry Burns, Chief Medical Officer for Scotland
• Martin Sime, Chief Executive, Scottish Council for Voluntary Organisations

This conference has been designed to be of interest to; People living with long term conditions, unpaid carers, local and national decision makers and service planners from the third, statutory and private sectors.

The event starts at 9.45am for registration and closes at 4.30pm. Complete and return the attached booking form to register for this event.

Book by Friday 14 January 2011 to qualify for the early bird discount!!!

Please pass this e-mail round your colleagues and networks. We would be delighted to have as many organisations/ individuals represented as possible at our second annual conference and AGM!

With best wishes
Justine
Justine Duncan
Events and Fundraising Officer
Long Term Conditions Alliance Scotland (LTCAS)
349 Bath Street
Glasgow G2 4AA

Tel: 0141 404 0231 FAX: 0141 246 0348
Charity No. SC 037475
Company No. 307731
http://www.ltcas.org.uk

LTCAS upcoming events -2011
Monday 17 January Meet the Leaders - Nicola Sturgeon, Deputy Leader of the SNP (LTCAS members only)
Thursday 3 February Living with Multiple Conditions: Issues, Challenges and Solutions
Tuesday 22 March LTCAS Annual Conference and AGM
For more information on LTCAS events please go to http://www.ltcas.org.uk or call 0141 404 0231

[barkingmad]

PAST EVENTS outcomes;

Living with Multiple Conditions; Issues, Challenges and Solutions

Over 100 delegates from the voluntary sector, NHS and Scottish Government gathered at the Falkirk Wheel on Thursday 3 February to raise awareness of issues affecting people living with long term conditions, explore challenges for individuals, services and communities; and look at identifying solutions.

Event Chair, Audrey Birt, Breakthrough Breast Cancer Care set the scene for conference and Professor Stewart Mercer and Professor Frances Mair provided an overview of the research that currently exists in relation to multiple conditions, including early findings from the national research programme.

Delegates then heard from Mike Martin, Joint Improvement Team who gave an insight into how agencies can better work in an integrated way that recognises, and responds to, the broad range of needs experienced by people living with multiple conditions.

Throughout the day, delegates discussed in groups 'what good quality support looked like' and ‘how they could identify solutions’, these discussions generated questions for the afternoon panel of speakers including, Professor Sally Wyke, Colin Mair - Improvement Service, Andy Carver - British Heart Foundation, Anne Hendry - Scottish Government and Ian Welsh - LTCAS.

LTCAS will be pulling together a report of the key themes, outcomes and recommendations from this conference.

LTCAS would especially like to thank Pat Stewart and Melanie MacLean for their valuable time and input and sharing their personal experiences of living with multiple conditions.





Radio Show Airs Pain

An Award Wining Radio Show, the first of its kind, is providing information and support to the 7.8 Million People in the UK who Live with Chronic Pain.

Airing Pain is the first internet radio show to tackle the problems of living with chronic pain. Produced by people in pain, for people in pain, Airing Pain is broadcast on the web at Able Radio.com fortnightly on Tuesdays at 11am and 8pm. Podcasts and CDs of each programme are available and remain available to listeners as a ready support system.

Programmes so far have covered neuropathic pain, children and young people in pain, diet and healthy living with pain, visits to pain clinics across the country, work and benefits. Future shows will include topics such as self management of pain, treatment options, staying active and pelvic pain. The programmes cover stories of people’s own experience of pain, interviews, and Q and A sessions with healthcare professionals.

Airing Pain is produced with help from a number of health professionals such as Dr Beverly Collett, and experienced producers such as Lional Kelleway and Paul Harvard Evans.

“We want to give pain a voice. We know that people have great difficulty in accessing the information and support that they need to be able to manage their pain properly, and we feel that radio takes information about pain, about the best help that’s possible, about self management right into the person’s room.” (Heather Wallace, Pain Concern)

“As a person that lives with chronic pain I would like to say thanks for the radio shows. At times you feel like the only one out there, and it helps to know there are others going through the same issues.” (listener, via email)

NEW EVENTS

10 March 2011

Turning up the Volume – a stronger voice for patients and the public in healthcare matters

The Beardmore Hotel and Conference Centre, Clydebank
NHS Quality Improvement Scotland will change to become Healthcare Improvement Scotland on 1 April 2011.

Healthcare Improvement Scotland will have some new functions and the ways in
which we do our work will also change. Their purpose remains the same - to
improve the quality of healthcare for the people of Scotland. Their vision for
involving people will be continued through our Involving People Network,
and strengthened to make sure that the views and experiences of patients and the
public are used to drive improvements in the quality of healthcare services.

They need to hear your views as we move into Healthcare Improvement Scotland so
please join them to find out more about the changes. It is important that you take part in discussions to influence new opportunities for user involvement in both scrutiny and improvement to deliver person centred healthcare.

Speakers and contributors to the morning session and workshops include:

- Dr Denise Coia, Chair, Healthcare Improvement Scotland
- Dr Frances Elliot, Chief Executive, NHS Quality Improvement Scotland
- Mrs Susan Brimelow, Chief Inspector, Healthcare Environment Inspectorate
- Mrs Jan Warner, Director of Patient Safety and Performance Assessment, NHS Quality Improvement Scotland

To register for this conference, and make your voice heard, complete the attached booking form and return by Wednesday 16 February 2011.

If you have any questions about this event, please send these to us at:
contactpublicinvolvement.qis@nhs.net or call Emily Glen on 0141 225 6997



14 June

Leading Change for the Future; Supporting People to Self Manage
Inverness

Key themes:

- Opportunities for Learning about Self Management

- Practical Examples of Self Management

- Partnership Working for Service and Educational Providers
- Promoting Self Management and the Need for Cultural Change

The conference is relevant to all health and social care professionals and their voluntary sector colleagues.

Register your interest now by e-mailing selfmanagement@uhi.ac.uk

Call for abstracts for poster and/or workshops now open. Please see details on form.

If you or your organisation are interested in manning a display then please contact us at selfmanagement@uhi.ac.uk for mor information

[barkingmad]

Information is available on the link below to read the report on living with multiple conditions.

http://www.ltcas.org.uk/documents/MultipleconditionsLTCASbriefing.pdf

information is also available here.

http://instantreach.biz/ALYVCULSPQ/5UMGQRXZHH/le/VFJIKUCTBD

The response from LTCAS on the DLA Reform is also available in the link below

http://www.ltcas.org.uk/policy_consultation.html


NOTICE OF LTCAS AGM, please contact Donna (admin@hypermobility.org) if you would like to attend and I can send relevant papers.

Dear Member/Associate

Please find attached the official notification of our AGM, to be held on Tuesday 22 March 2011 at Perth Concert Hall, at 12:50pm.

If you have not already signed up for our Annual Conference, and would like to attend the AGM only, please return the attached booking form to us by Friday 4 March 2011.
If you have already booked a place at our Annual Conference, there is no need to return this AGM booking form.

I am also attaching the following documents:

- Board Nomination Form
- Proxy Voting Form
- Minutes of last AGM

Please note that only organisations with member status can nominate board members and vote at the AGM, although all our members and associates are welcome to attend.

Regards

Veronica Harper
Head of Corporate Services

BW Donna

[barkingmad]

Free comedy workshops and courses for people with long term conditions

Universal Comedy, a Glasgow based charity and social enterprise set up in 2004 by people with ill health, has been successful in securing funding over 3 years from the Esmee Fairbairn Foundation to provide comedy workshops and training courses free of charge to people with long term conditions. The funding will enable people in the Greater Glasgow, Edinburgh and the Lothians areas and across Scotland to attend free comedy workshops and training courses aimed at improving confidence and self-esteem and reducing the social isolation and depression that ill health can cause.

Read More http://www.ltcas.org.uk/documents/NeedALaugh-Eflyer-4.pdf

Living well with long term conditions: Valuing experience and community assets - 9 March

The Long Term Conditions Collaborative are hosting their final event on the afternoon of the 9th March. This event will focus on Valuing Experience and Community Assets and will showcase the ongoing LTC Better Together patient experience workstream and General Practice support for self management Links Project outputs.

The outcomes of the session are:
• To demonstrate good practice in valuing and using experience to deliver improved outcomes
• To share examples of making better use of individual and community assets
• To describe how this work delivers the person‐centred quality ambition.

futher details available from Donna [url]admin@hypermobility.org[/url]

Supporting Disabled Children and Young People in Scotland - 26 April

For Scotland’s Disabled Children have teamed up with leading Scottish conference organisers Holyrood Communications to host this years ‘must attend’ event for all those involved in the planning and delivery of services for disabled children, young people and their families, as well as those accessing the services.
further details available from Donna admin@hypermobility.org

[barkingmad]

Emotional support matters for the 2 million people living with long term conditions in Scotland

The Scottish Government and Long Term Conditions Alliance Scotland (LTCAS) have published a new report, Emotional Support Matters, highlighting the need for better psychological and emotional support for people who live with long term conditions.

Launching the Emotional Support Matters report, Nicola Sturgeon, Cabinet Secretary for Health and Wellbeing said:

"Perhaps the most striking message is that if we take opportunities to meet people's emotional and psychological needs along their journey, then it's much less likely they'll have to recourse to formal psychological interventions.

The overwhelming message is about how listening and compassion can promote people's inherent capacity for self-healing."

LTCAS Chief Executive Ian Welsh added:

“Mental health problems such as anxiety and depression are the most common complications associated with living with a long term condition. Despite this, people’s emotional needs are often overlooked and a significant opportunity to prevent more serious mental health problems is missed.

We hope the launch of our report, along with the findings of the Living Better project, will help all of those involved in supporting people living with long term conditions to urgently address this gap in support and services.”

The report came on the same day as a major national conference launched the findings of the three year Living Better project which has aimed to improve the mental health of people with long term conditions. The project was funded by the Scottish Government and led by the Royal College of General Practitioners (Scotland) in partnership with the Mental Health Foundation and University of Stirling. Read the report. http://www.ltcas.org.uk/policy_reports.html#emotionalsupportmatters

Impact of VAT Rise on People Living with Long Term Conditions in Scotland



With the increase in Value Added Tax (VAT) to 20 per cent, the poorest tenth of the UK will be hit more than twice as hard as the richest tenth.
The strong correlation between having a long term condition and being in poverty means that people living with long term conditions will represent a large proportion of those worst affected by VAT rise.
The increased cost of living will disproportionately affect people living with long term conditions, many of whom will already have higher than average outgoings.
Furthermore, people with long term conditions will face increased financial barriers to managing their conditions, for example, increased cost of healthy eating, private exercise classes, social activities, alternative therapies etc.
To read the report in full, please click here. http://www.ltcas.org.uk/documents/ImpactofVATriseonpeoplewithlongtermconditions.doc

Impact of Welfare Reform on People with Long Term Conditions

At our recent Meet the Leaders event, Annabel Goldie MSP said she would pass on our concerns over welfare reform to Iain Duncan Smith MP. After consulting our member organisations in a call for information, we have compiled a report to express the views and concerns of our members.

A summary of our key points is as follows:

The current reforms are causing significant concern and anxiety among LTCAS members and those they represent.

Where people are able to work they frequently face significant barriers to finding, and sustaining, employment. Any drive to move people into work must also focus on reducing discrimination and improving the capacity of employers to support employees with long term conditions.
Many people with long term conditions are able to work but require support to manage their condition. Much of this support is under threat as public service cuts take hold.
There continue to be significant issues with the Work Capability Assessment. It does not effectively identify the impact of many conditions – particularly those that are hidden and/or fluctuating – to be taken into account.
It must be acknowledged that a small minority of people are unable to work and need to be far better protected from poverty than they are at present.
There is a real risk that current welfare reforms will push more people into a cycle where poverty and health worsen and they move further from, not closer to, the labour market. This will further exclude an already disadvantaged group and increase pressure on other public services.
Read the full report here. http://www.ltcas.org.uk/documents/ImpactofWelfareReformonPeoplewithLongTermConditions.doc

[barkingmad]

latest press release from LTCAS

Commission on the Future Delivery of Public Services publishes report

The Christie Commission Report, published today, calls for radical reform of Scotland’s public services, in both delivery and culture.
It identifies unprecedented challenges to the public sector in terms of sharply reduced budgets and increased demand from a changing demography and growing social need.
The Commission’s report concludes that nothing less than an urgent and sustained programme of reform embracing a new collaborative culture will allow Scotland to deal with a fiscal landscape where budgets will not return to 2010 levels for 16 years.
Its recommendations are informed by evidence drawn from more than 200 written submissions and around 100 meetings with the users and providers of public services.
Chaired by Campbell Christie CBE, the independent Commission was established by Alex Salmond, the First Minister, to examine the delivery of public services and produce a ‘road map’ for reform to improve quality and ensure financial sustainability given the significant challenges ahead.
It found systemic shortcomings in the current services and asserts that future arrangements must:
• Empower individuals and communities receiving public services by involving them in their design and delivery
• Integrate service provision and improve outcomes by ensuring public services work in partnership
• Prioritise preventative spending to reduce demand and inequalities
• Improve efficiency to raise performance and reduce costs

Key recommendations include:
• Tightening oversight and accountability of public services, introducing consistent data-gathering, benchmarking and performance comparators

• Giving Audit Scotland a stronger remit to improve performance and save money across all public service organisations, and merging the functions of the Auditor-General and the Accounts Commission

• Introducing a new set of statutory powers and duties, common to all public service bodies, focused on improving outcomes and with a presumption in favour of preventative action and tackling inequalities

• Making provision in the proposed Community Empowerment and Renewal Bill to embed community participation in the design and delivery of services

• Forging a new concordat between Scottish Government and local government to develop joined up services, with funding contingent on integrated provision

• Implementing new inter-agency training to reduce silo mentalities, drive forward service integration and build a common public service ethos

• Devolving competence for job search and support to the Scottish Parliament to achieve the integration of service provision in the area of employability

• Applying commissioning and procurement standards consistently and transparently to achieve competitive neutrality between suppliers of public services

• Reviewing specific public services in terms of the difference they make to people’s lives, in line with the reform criteria set out by the Commission


Commenting on the publication of the Commission’s report, Campbell Christie said: “The need for reform is clear. So, we believe, is the way forward. The process of reform must begin now and I would urge the Scottish Government to act quickly and decisively and to use our recommendations as a route map for the difficult journey ahead.

“This is not solely a matter of fiscal necessity but a once in a generation opportunity to implement radical reforms that will provide improved public services that are better focused on the needs of the people they seek to support.

“Central to this reform process is empowering individuals and local communities by involving them in designing and delivering the services they use and requiring public service organisations to work in partnership to improve outcomes and reduce duplication.

“We must also focus on tackling the cycle of deprivation and low aspiration that has blighted so many communities by prioritising preventative spending to tackle the root causes of the social problems that put such huge pressure on our public services.”

ENDS


Notes to Editors

• The Commission’s full report is available at http://www.publicservicescommission.org

• The Commission was established by the Scottish Government in November 2010. Its remit is available at
http://www.scotland.gov.uk/About/publicservicescommission/Remit

•The Commission comprises leading public figures who are independent of party politics and represent a wide spectrum of opinion.Members provided their time free of charge and were only reimbursed for expenses during the course of their work for the Commission.

• The Commission’s members are:

• Dr Campbell Christie CBE, Former General Secretary of the STUC, President of Scottish Council for Development and Industry since December 2009 (Chair)

• Dr Alison Elliot OBE, Convener, SCVO, and former Moderator of the General Assembly of the Church of Scotland

• Dr Roger Gibbins, Chief Executive of NHS Highland from April 2000 until December 2010. Former local authority Director of Social Services

• Alex Linkston CBE, Recently retired Chief Executive, West Lothian Council. Pioneer of European Foundation Quality Model (EFQM)-based performance improvement, community planning and single outcome agreements

• Kaliani Lyle, Scotland Commissioner of the Equality and Human Rights Commission, former Chief Executive of Citizens Advice Scotland and former Chief Executive of the Scottish Refugee Council

• Jim McColl OBE, Chairman and Chief Executive Clyde Blowers, Chairman of Glasgow Works and member of the Scottish Government's Council of Economic Advisers

• Professor James Mitchell, School of Government and Public Policy, University of Strathclyde, and published widely on multi-level government, devolution and public policy

• Eddie Reilly, former Scottish Secretary of the Public and Commercial Services Union and former member of the General Council of the STUC

• Councillor Pat Watters CBE, President, Convention of Scottish Local Authorities. Elected for third term in June 2007. First entered local government in 1982 as a member for East Kilbride and a Councillor in South Lanarkshire Council since 1995

• Dr Ruth Wishart, Journalist and broadcaster and Member of the Board of Creative Scotland


Media enquiries:
Camillo Fracassini/Nicki Sturzaker at The BIG Partnership on 0131-555 5522, email camillo.fracassini@bigpartnership.co.uk or nicki.sturzaker@bigpartnership.co.uk

[barkingmad]

Celebrate Self Management in Scotland with LTCAS during the Self Management Week 3 - 7 October 2011.

This update will give you all the information you need to get involved in Self Management Week. Join us in highlighting the range of self management work across sectors and across Scotland.

The aim of the week is to promote and raise awareness of the great self management work that is happening across the third sector, health and social care. The week will also highlight the self management awareness raising campaign ‘My Condition, My Terms, My Life’.

Please come along to one our three events; our showcase events in Glasgow and Aberdeen or attend our Self Management Reception at the Scottish Parliament. Places are going fast so please sign up now! All of our events are free of charge.

There are also a huge range of independent events happening around the week and across Scotland.

Please pass this email round your networks and bulletins.

[barkingmad]

LTCAS News

• The next LTCAS networking event will be on Friday 9 December 2011, 10 am – 2pm, LTCAS Hub, Glasgow and will be on the topic of Employability. To sign up, please e-mail event@ltcas.org.uk

• On Friday 27 March 2012, LTCAS and the Scottish Government are holding a conference on Employability and Welfare Reform at the Crowne Plaza in Glasgow. Read more

If anyone would like to attend please do contact me in the HMSA office! I think that many of us can relate to the difficulties associated with Employability and HMS!

We are also looking for people who can take part in the 'Walking Towards Better Health' project. this has been quite successful in other parts of the UK and can be a good form of exercise for people with HMS

• The joint LTCAS and Paths for All ‘Walking Towards Better Health’ project is now underway. It aims to raise awareness of the benefits of walking and to encourage those living with long term conditions to engage in walking for better health. Read more

[barkingmad]

Dear member

LTCAS members and Christmas Networking event and lunch will take place on Friday 9 December, 9.45am arrivals for a 10.15am start. This event will focus on employability for people living with long term conditions. Speakers confirmed include:

• Lynda Irvine, Skills Development Scotland showcasing the RPL Profiling Tool
• Pippa Coutts, Supported Employment Development Consultant
• MacMillan Cancer Support

The session will include a mixture of speaker sessions and plenary sessions where delegates can share good practice. The event will be followed by a Christmas networking lunch.

It would be great if you could join us at this event at the LTCAS Hub, 349 Bath Street. See attached the draft agenda for the day. To confirm your place please email event@ltcas.org.uk and include any catering or access requirements. Please pass details of this event round your colleagues.

LTCAS Annual Conference in partnership with the Scottish Government on 27 March 2012 will be looking at Employability, Poverty and Welfare Reform. This event will be an opportunity for LTCAS members to share good practice initiatives. Please register your interest using the survey monkey: http://www.surveymonkey.com/s/V8GFX7Z

If anyone wishes to attend please email me on admin@hypermobility.org

[barkingmad]

Dear HMSA members,

If anyone would like to attend the below, please do let me know on admin@hypermobility.org marked 'Attendance of LTCAS Event'

Carole Millar Research is undertaking research on behalf of Health Rights Information Scotland to test the usability of various documents which are being put together in order to inform the public about their rights and responsibilities as patients of the NHS in Scotland. These documents are being developed following the passage of the Patient Rights (Scotland) Act 2011 which places a duty on Scottish Ministers to publish a Charter of Patient Rights and Responsibilities.

To assist with research LTCAS would like to invite you to participate in a focus group on
Date Wednesday 8th of FEB 2012
Time 10am -12.30
Venue Venlaw Building, 349 Bath Street Glasgow




Spaces are limited (10) and will be allocated on ‘first call basis’.
To avoid disappointment please contact me ASAP to confirm your place.

[barkingmad]

Just a reminder that there is an event on the 8th Feb, see above post for details.

There is also this event below which is free to attend. It is a great opportunity for networking, so please do think about going along and getting involved.

The Gathering - LTCAS Workshop

When:
01/03/2012 at 10:30am at SECC

LTCAS are hosting an event at SCVO's the Gathering on "Twelve Propositions for Social Care." The session will be held from 10.00am - 11.30am. Sign up to this session here

LTCAS, with a range of partners, has been working to ensure the voice of people living with long term conditions is heard, and has an impact, within debates on the future shape of Scotland’s public services. Nowhere is this more relevant than in relation to social care, and the move to integrate health and social care, shift to preventative spend and adopt approaches that build individual and community capacity.

As we digest the Scottish Government’s plans for health and social care integration, and look to the next round of the Change Fund for Older People’s Services, LTCAS and partners invite delegates to join them, along with key speakers, to examine what these plans mean for the third sector and those they represent.

The session will build on the recently published “Living well with long term conditions; Twelve Propositions for Social Care” along with the report of the ‘Long Term Conditions and Social Care dialogue event’ held in September 2011.

The Gathering

SCVO's The Gatheirng brings together people from across Scotland and from all parts of the sector. The Gathering is the largest event of its kind in the UK.

The Gathering incorporates an exhibition and marketplace with over 100 exhibitors, as well as a packed events programme including over 50 workshops and seminars led by voluntary organisations, social enterprises, government, the media and companies who work with and alongside the sector.

Visitors can also enjoy a range of of product and service launches, entertainment, interactive activities as well as fantastic networking opportunities.

Visit the website for further details

LTCAS News

• Registration is open for LTCAS in partnership with Scottish Government, Living with Long Term Conditions: Employability, Poverty and Welfare Reform annual conference, 27 March in Glasgow. Keynote speakers include Professor Dame Carol Black and Michael Matheson MSP Read more

• This employability conference (above) is supported by a range of study visits, offering delegates the chance to see at close hand a range of innovative and successful approaches to employability across Scotland on the 26 March. Conference delegates and our wider network can sign up to these visits Read more

• LTCAS are hosting an event at SCVO's the Gathering on "Twelve Propositions for Social Care” on 1 March at 10.30am Read more

• Information on the LTCAS European Year for Active Ageing (EYAA) Project will be kept up to date on the LTCAS website, activities include an event on Friday 27th April to coincide with European Day for Active Ageing and Intergenerational Solidarity Read more
• Amanda Platt has recently joined LTCAS as Project Manager for the new Macmillan Lymphoedema Project (Scotland). This exciting 2 year project aims to improve services for people living with primary and secondary lymphoedema. Contact Amanda on Amanda.platt@ltcas.org.uk

This project below may be of interest to those of you with a dual diagnosis of CFS or ME. I have emailed Liz to see if it is ok for people amongst our group with a fibro diagnosis and or chronic fatigue in association with their HMS. I will let you all know if there is a problem but I should think this will be right up your street! So get involved!

Work4ME Pilot Project


This pilot project is being run by a group of professionals in Scotland who are determined to lessen the negative impact that ME/CFS has had on their careers, earning potential and self esteem and to regain some level of control over their working lives. Their goal is to develop a co-operative, umbrella framework that will give members access to self-managed, sustainable employment or self-employment opportunities within a supported on-line environment.

read more http://www.ltcas.org.uk/news-and-events/news/2012/01/work4me-pilot-project/

[barkingmad]

If anyone would be interested to attend please contact me on admin@hypermobility.org

Self Management Champions
Do you have experience of living with a Long Term Condition?
Would you like to use your experience to improve the NHS?
Come along to our two day Voices Scotland Workshop which will
make your voice heard
• Raise awareness of how encouraging people to manage their own condition can
• Empower you to keep self management at the top of NHS priorities
and regulated by the Oce of the Scottish Charity Regulator (charity no SC018761), Chest Heart & Stroke Scotland and CHSS are operating names of The Chest, Heart & Stroke
Association Scotland. Also registered in Scotland as a company limited by guarantee, no SC129114.
Monday 5th March 2012 10.30am - 3.30pm
Thursday 15th March 2012 9.45am - 4.30pm
Venue:
Terms Conditions Alliance
Venlaw Building
Bath Street
Glasgow; G2 4AA PLEASE NOTE THIS IS A TWO DAY WORKSHOP

For more details or to book a place please contact:
Dave Bertin, Chest Heart & Stroke Scotland,
0131 225 6963 - dave.bertin@chss.org.uk

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Dear Scottish Members,

We would be very grateful if one of you could attend on behalf of the HMSA. Please check out the website for further information as directed below.

Dear LTCAS member /associate


‘Changing Support, Changing Lives’ is a three year project to help service providers get better at delivering self directed support. Self directed support is a way of giving people more choice and control over the services they use.

Different organisations are involved including: Scottish Consortium for Learning Disability (SCLD), ENABLE Scotland, In Control Scotland, LTCAS and Institute for Research and Innovation in Social Sciences (IRISS).

People who use services should be involved in developing this project. We want to set up a group to do this. The group will:
• Learn about self directed support
• Learn about the ‘Changing Support Changing Lives’ Project
• Give their views about the project as it goes along
• Make sure the views of people that use services and carers influence the way the project develops
• Take part in evaluating and monitoring ‘Changing Support, Changing Lives’.

LTCAS are looking for members for the new reference group to develop this project. This includes people with long term conditions who use social work services, carers and professionals.

To find out what difference you could make, what skills and qualities you need and how you will be supported to take part, please go to the LTCAS website, where you can also download the application form.

Kind regards

Nancy


Nancy Greig
Network Development Officer
Long Term Conditions Alliance Scotland (LTCAS)
349 Bath Street
Glasgow G2 4AA

Tel: 0141 404 0231
Mobile: 07545425604

Charity No. SC037475
Company No. 307731

www.ltcas.org.uk

[barkingmad]

Hello everyone,

Here are just some of the things that LTCAS has to share with you at the moment. Please contact Louise Wanczycki on the telephone below for more information or visit the website on [url]ltcas.org.uk[/url]

Dear Colleague

LTCAS News

• Report from LTCAS Members’ Networking Event, 9 May 2012: Shaping the Involvement Network – Where do we go from here? Read more

Policy and Campaigns

• Integration of Adult Health and Social Care consultation deadline extended to 11 September. Read more

• Update on the Review of Community Planning and Single Outcome Agreements. Read more

• Revised Getting it Right for Every Child (GIRFEC) Guide now available. Read more

• Children and Young People Bill: Series of engagement events. Read more

• Children and Young People’s Mental Health Indicators – Final Report. Read more

• Current consultations:
o DLA Reform and Personal Independence Payment – completing the detailed design (closes 30 June). Read more
o Draft Charter of Patient Rights and Responsibilities (closes 30 June). Read more
o National Framework for Child Protection Learning and Development in Scotland (closes 5 July). Read more


News from our Network

• Doctors’ industrial action – Thursday 21 June 2012. Read more

• Launch of Work4Me in Scotland. Read more


Events

• 12 Propositions for Social Care Engagement – LTCAS Members Networking Event, 18 July, Edinburgh. Read more

• Strictly Tea Dancing – North and South Ayrshire Carers Centres, 20 June, Troon. Read more

• NHSScotland Event 2012, 21 and 22 June, Glasgow. Read more

• Co-production Workshop, 25 June, Dundee. Read more

• Changing Support, Changing Lives – Progress for Providers, 26 and 27 June, Dumfries. Read more

Best wishes

Louise

Louise Wanczycki
Assistant Policy and Campaigns Officer, and
Project Assistant – European Year for Active Ageing
Long Term Conditions Alliance Scotland (LTCAS)
349 Bath Street
Glasgow G2 4AA
Tel: 0141 404 0231 FAX: 0141 246 0348
Charity No. SC 037475
Company No. 307731
www.ltcas.org.uk

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ALISS (Access to Local Information to Support Self Management) making self management support more findable. Visit www.aliss.org for more details.