Typical. Just jotting this draft down, I'll write in later.
This evening I dislocated my left shoulder while driving to the shop. Obviously, as it's been a couple of weeks since that shoulder went out I should probably have high tailed it to the nearest hospital to demand morphine, but since I am an actual EDS patient and not a fictional character dreamt up by a medical advisor whose attitude to patients stopped developing somewhere around 1980 I did what most of us do; very, very, very gently stretch out the joint, reduce the dislocation, get home and rest the affected arm for the remainder of the evening with a little pain relidef from my TENS machine and my usual analgesia.
I'd like to thank the BBC for so accurately portraying the attitude of medics to most EDS patients. I don't regularly attend a hospital to have my injuries treated. I'm often asked why and now I'll be able to show them the one minute clip of Casualty episode 'Til Death do us part' by way of explanation. After all, who's going to hang around a hospital in severe pain for several hours in order to be dismissed as a self harming hypochondriac with a drug problem and then have an injured joint wrenched about by a medic whose intention is to punish the individual in question because they do not understand their condition.
Contrast and compare how ITV soap Corrie handles Ehlers-Danlos. With sensitivity and thoughtfulness they've been using Cherylee Houston's character to help explode some of the misconceptions some of us face daily, for example being in a wheelchair but able to stand and walk a little must mean you're a fraud, likewise having an invisible disability makes you benefit scrounging scum. I understand that with the current government rhetoric about disability benefits it is easy to join in the witch hunt, but really - I expect much better of the BBC.
I trust we'll see an episode shortly featuring the same character, who following the rough reduction of his shoulder by Holby staff was afraid to return to the hospital despite his hand starting to go blue in the days afterwards (I'm repeatedly told I risk this every time I put it back in without an Xray having been taken). I'm sure those medical advisors can come up with some lovely consequences of failure to seek treatment for any number of injuries - really, take your pick... the EDS character will likely have them on a daily basis.