feel the cold

[clairbear]

Hello!

I too am a chilly mortal - I am pleased to see that it is linked to EDS - everyone usually just thinks i am a wimp! I bought some really lovelt sheepskin slippers and some North Face thermal gloves over the weekend - as my usual gloves just aren't warm enough. The North Face gloves are being road tested this afternoon !

Clair

[FIN1]

Hi

I'm constantly cold, my husbands thinks this is strange as I'm always wrapped up in my dressing gown or jumper. Then again he's the opposite and walks around in a t-shirt all year long without managing to get the cold!

The winter is a killer, I think it makes my joints feel worse and definitely stiffer.

[Stone]

Agree with that, it's freezing already! Doesn't help I've got the patio doors open to try and dry some paint without stinking out the house...(don't ask)

I found my thick softshell gloves the other day which was a very happy moment! I normally wear fingerless ones if I'm getting a bit of a chill as they let you warm up a bit while still being able to write/type/do stuff My lower finger joints are worst in the cold so it works pretty well.

Stone

[everhopeful]

As a Raynauds sufferer, I'm definately feeling the cold. I didn't break a sweat once, this summer, to my knowledge! I'm in the market for some new gloves cos my outer pair have sprung a hole and it's on one of my worst fingers regarding reactions. I wear the raynauds "silver" gloves under another pair and still my hands react (even on nifedipine). Not looking forward to the predicted chill down at the end of this week!!!

Liz

[sheppeyescapee]

I have been freezing! Forgot to wear my gloves when I went out so I turned up to my slimming class with blue hands Feet have a habit of going blue too. When I was younger my nose used to go bright blue too I had a hot water bottle on my feet to warm them up and I couldn't even feel how hot it was, my feet were so numb and cold On my way back from slimming class it was so cold it felt like someone was stabbing me in the hip

[laracomps]

Ah some fellow cold people...!

I've been utterly 'freezing' all day, I honestly feel like an ice block. I whacked the heating up, and have been sitting (well laying) on the sofa with the kids watching films today under my slanket, with my toddler laying on top of me with her thick fleecy blanket on, AND furry boot slippers and socks. I'm still freezing.

For me it seems to be connected to pain & tiredness. If I'm in a lot of pain it feels as though my body just shuts down, and I get this cold, nothing warms me up, and I get so tired that I can't keep my eyes open physically. It's horrible. Had it for such a long time now, when I was a teenager and pre-diagnosis, the Dr's thought I had ME.

Just another one of those 'things' you have to deal with with no magical cure or pill!

Off to warm/fry the wheat bag...

[madmum]

I find wearing mens thermal vest helps a lot. My right leg gets cold and goes purple so i wrap a blanket round it when sitting and keep my long boots on. Cannot wear a glove on my right hand due to the splint and the thumb pain.

[carolyn]

I wear thermals a lot, I'm always cold.
My friends thought I was nuts last year when we stayed in Vegas and in the night I had extra blankets on my bed and some days walked round in a hoodie. They were all sweating buckets.
Never thought before that it could be linked with EDS/HMS

[_Sara_]

Reading this I am very very glad it isn't just me! What a relief Work are a pain at the moment as I am not allowed to wear my jacket and let me tell you it its freezing! My hands and feet are defiantly the worst effected also.

[Rosie]

Hi Sara

If you have told your employee that you have a medical condition or are disabled then they have to make 'reasonable adjustment' for you, and this would include letting you wear your jacket or additional clothing as your condition causes you to feel cold.

Rosie

[shirleytx7]

I too have always felt the cold. I live it Texas and it has been very hot here all summer from 90 to over 100 degrees. I hate the summer as the air conditioning is terrible and I have to wrap myself in a blanket at work to get through the day. Luckily no one seems to care.

[_Sara_]

Hi Sara

If you have told your employee that you have a medical condition or are disabled then they have to make 'reasonable adjustment' for you, and this would include letting you wear your jacket or additional clothing as your condition causes you to feel cold.

Rosie

Its gets nowhere to be honest with you, Iv been asking them for years to let me face in a certain direction with me being deaf but i never get anywhere Iv given up asking. Im sure they think I am making things up like when i say I have difficulty lifting heavy things they always try having me lift heavy things. I think its something I would have to get a form from the Dr's for? However my Dr knows very little also! Oh how nothing is ever easy for us

[Rosie]

Hi again Sara

I think you may need to read up on your rights. It doesn't matter what your condition is, if you meet the definition of disabled within the law then your employer has obligations under law. Ignorance of the law does not mean they can pretend it doesn't exist, the onus is on your employer to know the law. There is a small amount about 'reasonable'adjustment here, or just google 'disabled employee rights', there are organisations that can help. One of these is Access to Work, who you can apply to as an individual, who wioll assess you in your workplace and make reccomendations, they will also partially fund some stuff. Another approach is to ask to be seen by your employer's Occupation Health (if they have one). Unfortunately it is often up to us as individuals to get things moving, but if your workplace is making you ill it is worth doing.
If all else fails, mentioning the Disability Discrimination Act may help.

Rosie

PS - anything you discuss with your employer or line manager, ask for it in writing.

[louloutinks]

I have an electric blanket on at night all year round but with the ANS stuff, I get hot, cold, hot cold, so it is on, off, on, off!!!

[Smol]

Hi All
until I was put on tramadol I was constantly cold, even in summer, the only time I was ever comfortable was abroad. Then since the tramadol, my feet especially ,but hands too are still freezing while at the same time I'm alternately sweating cobs or shivering (feel a bit peri-menopausal) my hubby is always hot and is my own personal hot water bottle. The only time my feet are ever warm are while I'm in the bath or just when I wake up. Occasionally I have incredibly hot feet, which I just can't stand, they are so itchy and sore and red and make me realise how much I actually prefer for them to be cold