Sensitive comments

[Eloise]

wow that was really sweet lainey. I have a mate who has heated seats in his car - they are wonderful.

On thursday, I got to work in agony after being stuck in a traffic jam for 1hr 1/2 and already on a bad pain week. So I just went and made myself a drink and sat quietly at my desk. With that one of the others noticed I had only made a drink for myself and commented (as normal you have to make a round for everyone). I obvioulsy looked awful as I just turned round and said - "sorry I really couldn't have made more and I didn't want to ask anyone" so then someone else said - "well why didn't you ask - we are now all offended you didn't ask - of course we would have made you one!" and with that everyone else told me off for not asking for help. They are all so good its amazing (shame HR isn't!).

[cavemonster]

Just wanted to say how wonderful my Husband is!
We were discussing DIY earlier today - we've got it to the stage where essentially all that needs doing is painting. He said "Ceilings, don't worry about them, I'll do them; my shoulders don't fall apart if I hold my arms above my head". That was it - simple - move on - you can't do it - it's not a problem, I'll do that.

Also today, we were discussing me having to go to work tomorrow, he tells me I could take the car as he's on nights so doesn't need it tomorrow afternoon. He sees my face - not the reaction he expected and says, "or I could drive you there, wait, and drive back, that's fine too." It's an hour and a quarter drive to work and my shoulders can't cope with that, so he offers to not sleep after a night's work to drive me to York, wait for an hour, then drive me home again. What a lovely man.

[Tiz]

What a lovely husband you have! I always keep an eye on this thread for when someone's posted something new, always puts a smile on my face

[sueiz]

This is more of a sensitive action, but here goes:

i hosted a meeting at my house (so I didn't have to drive & therefore could take full pain-meds) anf the first lady to arrive took one look at me hobbling about, and promptly insisted on me sitting down and wouldn't let me get up again - she made all the teas & coffees, then when the meeting was finished insisted on doing all the washing up too!

it was a little disconcerting at first, being bossed around in my own home, but actually it was a lovely gesture from a complete stranger, and made me feel really loved & blessed.

[cavemonster]

That's lovely Sueiz

[Beth]

We just had to make a trip to the ER last night- my daughter was taking a shower and heard/felt something pop in her foot, then was in terrible pain that didn't ease up. This was our first trip to the ER knowing about the EDS, so I was fairly anxious and worried about how we would be treated. Everyone was great - the nurse practicitioner and x-ray tech were very compassionate and gentle.

But the greatest part of the evening was the male nurse... After the x-rays were taken, he came into the room with a notebook and pen and asked for me to tell him the name of the condition Em has - asked me to spell it for him as he wrote it down. Then he asked for me to explain about EDS so he could understand. When he left he thanked me for educating him! I was so greatful all I could say was 'Thank you for asking about it'.

Not sure if that was technically a sensitive comment but it was so nice of him (he was quite busy) and it went so far to alleviate my anxiety that I just had to post it somewhere!

Beth

[sueiz]

That's most definitely a sensitive attitude!! Wish there were more professionals like him who are big enough to be honest that they can't possibly know everything.

How refreshing, i hope his attitude is catching!

[Flora]

not a sensitive comment, as much as an action. On Thursday I had just got off the train home, and was walking very slowly down the platform to the stairs, when a friend said hello. He knows I'm disabled and also knows how I usually walk, I was really struggling to walk at all, and was dreading the walk home. A taxi was financially out of the question. He offered a lift home at once, although it is out of his way. He was so matter of fact about the way I was walking, and put my things into the boot for me, and took me as close to my door as possible. He has his own problems with his shoulder, so I know driving further is harder for him. it was sooo needed, so to him!

[madmum]

Having been asked about starting a local group i spoke to my 10 year old son about it. Despite having a seriously awful week pain wise he said he would help as he wanted to help other people like him. Fair play to him,one proud mum.

[Finarda]

That was really admirable of him. You must be very proud!

I took the train last week to meet an friend that I'd met online 10 years ago and we've been close friends since. We had a blast wandering around the city but got lost multiple times so spent most of the day walking. By the time I got home and off the train I was hobbling pretty badly with my stick. I'd stupidly parked in the wrong car park so had to walk about 100
yards. A car pulled in and a couple asked me if they could give me a ride somewhere as I was obviously in pain. I said no as by that time I was really close to my car but I thanked them enthusiastically as I really appreciated their offer.

Fiona

[cat117]

This isn't a comment, just something really sweet that makes me get the 'warm fuzzies' whenever I think of it.

For some unknown reason my partner gives really good massages and since my shoulders started playing up he's been learning (by trial and error which can be quite painful but bless him, at least he's trying) to massage them without damaging anything because they tend to get really stiff right before they do something unnatural. We're hoping that if I can stop them being so stiff it might help stop them getting worse. But even if it doesn't help I love him so much for understanding and trying to help

[madmum]

This is unusual for me. I nominate my sons teacher who today quietly offered him to sit in and read rather than see him hobbling around outside. How refreshing to have someone at school offer practical help. Thank you Mr M, you are a star.

[hannah]

My new cardiologist did the most sensitive, nice, amazing thing ever:

I had an outpatient apppointment regarding PoTS. I stood up in the appt for a few seconds and crumpled. 5 mins later I was still lying on the couch scarcely able to open my eyes and he says "if it is OK with you, what I would like to do, if you don't mind, is admit you for treatment here and now." I could have hugged him. Contrast to the other Dr I saw about 2 months before, who had seen me in exactly the same state and told me to do more exercise!!!!

Hallelujah for Drs who can see through a brave face and take HMS/EDS and its associated quirks seriously

And later, when I was in hospital he came to see me and found that pharmacy had messed up and I was way overdue my meds. my whole body went into shakey spasms every time I talked. It was awful. He sat down next to me and said "just relax. You don't need to explain. I've seen exactly the same symptoms in PoTS patients before - and no, it isn't psychological! (to the nurse) what is the ***** pharmacy number!" and proceeded to tell pharmacy that, well, shall we say, my meds were urgent. lol.

[Pickle]

Omg, Hannah, he sounds amazing!

Reading your post has just made my day a little bit brighter

[littleyellowfish]

Wasn't so mmuch a comment today but a nice gesture from some of the guys at Uni!

Basically we had a powercut mid lecture on the 6th floor. By the end of the lecture still no power and so hobbled towards the stairs as obviously the lift was out of action. A guy on my course asked if I needed help so I explained about my hips and knees dislocating etc and so he carried me down and his friend carried my bag. He then came and sat with me and a couple of my friends and showed a real interest in HMS. Was the first time I've met someone not being negative towards me because of it and wanting to know more