hi Adelle, am sorry to hear about your ankle. I hope that all goes ok.
I am 8 months on from having 2 ankle ligaments reconstructed with tendon and all other ligaments in the same ankle tightened. the surgeon is really amazed that I hav'nt started subluxing again yet. He could'nt believe that I had been walking around for 18 months with just a bandage on and no crutches! As he put it after my surgery ' we moved you in theatre and your ankle dislocated before we touched it'. my reply was 'it did it everytime i took a sock off or lie on my right side!'.
My surgeon has been brilliant, he understands how fragile my tissue is. We agreed if i could get an 'almost normal ankle' from soft tissue surgery and get at least 2 years out of it I would be happy. If I somehow undo this repair we are considering artificial ligaments as a step before fusion. He is worried about how that would effect my knees as I am fairly active. It will all depend on whether or not I put my foot in a muddy hoof print again!
I was however in plaster for 4 months and was still struggling to walk properly until july/august. I am now waiting for new orthotics from Leeds, (I dont trust anyone else to make them).
It sounds to me like you have had a really rough time with your ankles, for a much longer time than me. am guessing from you post that all other avenues have been looked at? i think you are very brave to be going ahead with fusion, I would be scared too.
You are the only one who can make the decision about surgery as it is your body.
Let us know how things are going, take care.xx
Officially diagnosed with BJHS/EDS in 2006 by Prof Bird (no one could make their minds up!)
I also have Secondary Fibromyalgia, IBS and Chronic neuralgia in multiple areas(I Should have fallen off ponies less as a teenager).
Motto-I will not be beaten!