WOW! so now it's not 'only' THE top UK specialists that will be there and speak, now it's international top docs speaking!
(for those that might not know, tinkle is from the US and he's written and published one of the few books on HMS)
and yep I think it will be v good!
all our UK top docs are v special docs indeed- on top of knowing all that is known about bendy issues they are also v lovely, v approachable, v friendly and open humans
and from what I have heard tinkle fits right in with them
and just being with all bendies and peops that understand... is fantabulous!
for once all our 'oddness' is 'normal'
and although generally it is rather a jolly affair, lots of joking and laughter about all our oddness and probs, if for any reason (and of course there can be many- bad pain/pots/digestive etc day or 'just' emotional overwhelmment) someone bursts into tears-
that's also taken as 'normal', no one will look at you weirdly, all understand- peops will rally to support you, but if you just want to be left alone- you just need to say and it will happen-
one word of 'warning'/advice... the whole thing can indeed be rather exhausting... so best plan on having a few 'easy/dont do too much' days before and after if you at all can...
with all the 'happy excitement adrenalin' I was 'crazily bouncin about like tigger' during the conference... but 'crashed' big time for some days once home (and the adrenalin stopped)-
but the experience of the conference was SOOOOOOOOOOOOOOOOO worth the 'crash'!!!!!!!!!