My daughter finally had her OT evaluation yesterday. The OT is very concerned about significant weakness in her shoulders, elbows, wrists and fingers so Emily will have visits 2X a week for the forseeable future - or until insurance puts a stop to it
. It is so discouraging to discover how much she has deconditioned in such a short period of time but at least we are finally going to get some much needed help. We mainly wanted an assesment of her fingers but are getting the whole deal. Not complaining though!
I am a little concerned about the therapy being too aggressive but 'G', the OT, is a colleague of my husband and is extremely compassionate with Emily and I know she will adapt the exercises as needed. She admitted she is not familiar with EDS but is willing to learn.
Question, does the book by Graham and Kerr deal at all with OT/ upper body rehab? Would it be helpful to both PT and OT. Since she is having both PT and OT at the same place, if the book could help both of them treat her I can suggest it to the Rehab Dept or get it ourselves and lend it to them.