Ooops, yes, I deleted a few words and forgot to add them back in
- I should have said that "the body attacks the gastric parietal cells and/or the intrinsic factor that helps absorb the
B12 that is digested". Megadosing can actually work in PA but from what I remember it wasn't clinically recommended (and the studies I read class megadosing as using huge amounts of supplements - you'd never be able to megadose on food). My uncle has PA and I have low B12 frequently hence why I had done some research on it a few years back.
My other point isn't really about PA just using it as an approximate example. In PA, there are various ways and degrees that it can happen so we shouldn't totally discount nutritional supplementing for HMS/HEDS (and again, I'm talking about getting the nutrients via supplements not just food). I don't know if any of what I'm saying is actually the case, but the most relevant point is that neither does anyone else since we don't know how HEDS or HMS actually works on a genetic or molecular level and I always cringe when I see the natural reaction (which even I have) that nutritional supplements won't work.
Diagnosed EDS - Hypermobility 2004. Severe Hemiplegic Migraines. Both kids show hypermobility but haven't been tested.
A Scot living in Canada