Can anyone suggest books they have found helpful please?

[longtallgal95]

Modnote: This thread is for discussion of books about HMS, whether for self-management or explaining the syndrome to friends/family/doctors. Post edited to remove additional (accidental?) text

Hi. I am newly diagnosed but am in my 60's and had 40 years of pain and injuries. I need to help myself as my GP practice is not very supportive. I find that I cope better if I am well informed. Has anyone any suggestions for books that they have found really good? I have sent for the book list but I wondered if you had any suggestions as lists don't always help as you can't see the books in a book shop. I would really appreciate some help please. Thank you.

[Spireite]

Hi,

My GP practice is totally lethargic and disinterested so helping yourself is definitely the best option in my opinion. I can't recommend any books but I do scour the internet and print off the best and most relevant bits and make my own files of useful stuff by body area. This forum is also good for ideas.

[longtallgal95]

Hi. Thank you, I will do that and start a file too. I have not done much of it as I find it a bit overwhelming when so many sites come up and some seem a bit depressing. But I need to be well informed so will have a go, today! Thanks.

[dragondee]

The best info is in Prof Graham's book.
If you join the HMSA you will be sent a basic pack which includes some very useful info.
i think some of it might be downloadable from the site.
Dragondee

[longtallgal95]

Hi, Thanks for the information. I have joined the association now and have sent for but not received the book list yet so can I ask what is the name of Prof Graham's book please so I can look for it? Thank you.

[lil_miffy]

Imn looking for a good book on hms. One that i can turn to for info when i need to as well as something that i can lend to friends and family to help them understand the condition.
I have heard that Issues and Management of Joint Hypermobility Book by Dr. Brad T. Tinkle is a great book. Theres also the one aimed at phsyiotherapists.
What book would people recommend?

modnote: merged into existing thread

[cll]

The book I bought was Issues and Management of Joint Hyper mobility by Brad T Tinkle
Very easy to read and understand
Claire

[pink]

I have the Brad T Book and its ok. I'd find it more useful for passing info to firends / family who would be prepared to read it as, due to this forum and my own nosieness combined with v good physios in bradford and a gp who specialisies in rheumatism, I had a good base of knowledge anyway. But is good for others

[serenity79]

The book I bought was Issues and Management of Joint Hyper mobility by Brad T Tinkle
Very easy to read and understand
Claire

I'm glad to hear that, I've recently ordered that one and am waiting for it to be shipped to me. I'd also like to get Professor Grahame's book at some point as well. At the minute I don't have anything printed off but I have a folder in my bookmarks of EDS related links and pages I've found useful as I like to refer back to them from time to time.

[mouse]

Hello, I've just got 'Overcoming Chronic Pain' from the library. Its really very good (in my humble). I recognise lots of things which apply to me.

[longtallgal95]

Thank you all for telling me the books that have been helpful to you. It helps as there are few specific ones and loads about pain so it is a little daunting! Thank you. If I find any others that I think are good I will post them too.

[roqchiq]

One book I'd recommend for people of any age is 'Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties' by Laurie Edwards.
http://www.bookdepository.co.uk/book/97 ... -Disrupted
http://chronicillnessbooks.com/product_ ... 9cd35f6054

It's a very practical guide to dealing with all aspects of life from careers to relationships - and even includes a little bit about someone with EDS!

[Jill]

What books would you recommend for self-management? As far as I get the Brad Tinkle book is more like an explanation for others.

One book I'd recommend for people of any age is 'Life Disrupted: Getting Real about Chronic Illness in Your Twenties and Thirties' by Laurie Edwards.

That's a shame that they don't sell Kindle or other e-book versions.

[Retro]

If you visit our Other Publications page on the main website there is a list of books with links which help the HMSA raise funds too

Lindsey
Site Admin

[Tess]

I've just got the Isobel Knight book 'Bending without breaking' - haven't read it yet, but it looks good.

Has anyone read 'Hypermobility, Fibromyalgia and Chronic Pain' by Alan J Hakim, Rosemary J. Keer and Rodney Grahame, or 'Hypermobility Syndrome: Diagnosis and Management for Physiotherapists' by Rosemary J. Keer and Rodney Grahame.

They look like good detailed books, but was wondering if they might be too scientific, and just aimed at physiotherapists and people who know what all the technical terms mean!?