Okay, internet going slow so I got half way through this thread, and gave up, as I thought of a couple of things, that I have done in the past.
For, occasional acquaintences, "Still waiting for a full service and MOT on the NHS!"
For someone who is interested, genuinley,but someone you don't know, like the poor taxi driver, the other day, " you know collagen makes you strectchy? well mine makes me too stretchy, and things fall out of place a lot, like my pelvis at the moment." ....Nope it's genetic, cant do anything about it, it's how I am built."
I sort of had a problem explaining to hubby about it. and for all I complain thAT he is Soooo north East working class, and I ranted when I was awarded DLA, and he called me a cripple, I have actually found that since then, he's become very good at explaining to others for me, as in Neighbours and so on. And even though, currently, I am avoiding the issue of a wheelchair, even though I know it would do me a lot of good, but still, I wont go there, he actually is seriously thinking about it, and has worked out that he isn't going to leave me when I get that bad, strange man.
he's even working out a rota for pushing the wheelchair up steep hill in lincoln, at the christmas fair.
He now accepts that he cant fix things,a nd make it alright again, and this is such a sudden turn around, that it has left me bemused. I have no idea, how or why he has suddenly come to understand. He doen't understand the having to get up and move things though, and wants me pinned on a settee, all the time, with everyone else doing things for me
Don't ask me how he came to the conclusion, as I don't recall saying anything in particular about it, so I cant give advice on how it suddenly happened. Just hold onto the hope that It may happen for you aswell.
Professional Hypochondriac and Attention Seeking mother! Familial JHS/EDS3, F/M, 22/3/2010
Skake(Thats the Tremor) Rattle(That's the tablets) and Roll(in and out of anything) all the way.Hypermobile 2005