okay, I filled in the forms, with the help of a nice guy on the DLA advice line on 22nd june. He asked the questions so I could understand them, and everything. So I felt quite positive aboout it especially as he did the writting for me.
Then 10 days ago I got a letter from the GP, asking me to go down and see the GP for the DLA forms, took huge long list with me of things going wrong, and info on HMS, which she told me to keep, and educate the local Rheumy with. We had a chat, and I left her to do the forms.
Anyway today, recieveda phone call from DLA, "just to clear up a few discrepancies", as I was working, and had a car crash in Jan, not my fault, which seems to have kicked this off again, severely. Asking about work, and driving, was quite surprised I still had my drivers licence, and told him DLVA had previously assessed me aand said I could keep it. Said GP stated that over past couple of years I have been deteriorating rapidly, didn't realize she was that aware of what was going on with me.
And now I am worrying, he said I will hear within 2 weeks, but now that means 2 weeks of me worrying about this, and preparing myself for an appeal.
Professional Hypochondriac and Attention Seeking mother! Familial JHS/EDS3, F/M, 22/3/2010
Skake(Thats the Tremor) Rattle(That's the tablets) and Roll(in and out of anything) all the way.Hypermobile 2005