I got a series of answers of 'approximately normal' from a range of neuro tests, except the autonomic tests, which clearly showed PoTS and another which showed a slight problem processing balance info.
What I got out of it was the knowledge that nothing serious was going on - it was almost entirely EDS and PoTS - which is related to EDS anyway. This meant that physio's were better at treating me because they didn't keep worrying that I had undiagnosed cerebral palsy, or MS, or spinal damage, or brain damage from a stroke.
The PoTS diagnosis meant I take meds and have made lifestyle adjustments that mean I can do sooooo much more, and enjoy things more too
- definitely a plus!
The balance diagnosis means that I have some balance focused physio too which helps, and because I know it is real I don't worry about my wobbles - just roll my eyes and straighten up again.
Whether there is any point depends on your symptoms and Dr advice. If a Dr says they want you to go, I'd go. Because either they will diagnose something which will help explain your symptoms and possibly help manage, or they will not, so you can know it is probably just HMS/EDS and manage it accordingly (diagnosis by elimination). This will reassure those treating you, and inform how they treat you.
Bearing in mind that my symptoms were - major lack of coordinaation, speach dificulties, concentration dificulties, breathing problems, twitches, shakes, visual disturbances, semi-fainting etc. it was quite clear that investigation was needed - even if it turned out to be 'just' EDS and fatigue.
If you have part(s) that have lost feeling, nerve conduction tests can see how much damage/compression there is to the nerve, and sometimes there are small operations, such as the ulna nerve release op, which can make a huge difference.
If you have a good GP or physio or other medical person, be guided by them.
P.S. Leashy, I too had a lovely neuro doing my tests - a young technichian who I had a great laugh with, and when odd results started arriving he called the consultant, who also had a great sense of humour and a great bedside manner. And don't worry - first appointments rarely involve tests - they normally just decide which tests to send you for.