hi guys - looking for advice again
you all know our situation - I have HMS, hubby has suspected narcolepcy and 2 out of 3 of our young daughters have HMS too
we turned down advice before about trying to get help from social services purely cause we didn't want random people in our house doing our chores or being with our kids (I am a bit of an overprotective mummy)
anyhoo - had a thought. one of our friends is a carer to a young man with autism. she has done it for years and she mentioned she gets paid from his parents via direct payments. She has been told they no longer need her as they are going with another carer from the council this time. So she will be out of a job
well the thing is - I am really bad just now, and our 3 yr old is having really bad days as nursery is really taking it out of her - getting her to leave th couch is really difficult and she refuses to go most of the time. Also just found out our 5 yr old def has it too and she is on meds now etc etc
anyhoo - we really could do with help around the house, or help getting becca to and from nursery or, for me, help doing shopping (kills me every time as I struggle with the trolley etc), basically help in all areas.
do you think we could get direct payments and pay our friend to give us some extra care?
I wouldn't want a stranger in, and becca does not take to strange people - she knows our friend and we know our friend is good at getting becca motivated to go places etc. I am only considering this cause I think I am now burning on empty - especially as eldest has problems which is causing me great distress to think I now have 2 out of 3 with HMS and to think of the pain they are both in.
it is also difficult for me to get out full stop - the thought of going out tires me and as you know we have no help at all from family. I could possibly imagine having our friend helping with things might make us not feel so trapped. (my husband doesn't like going out of the house due to fear of passing out in public now)
what do you think?
we have a man from the carer's centre coming out a week on monday to help me with my dla application and to do a carers assessment on me and our 5 yr old. so I was going to ask him. Like I said before we have been told to ask social for help but we would all feel more comfortable with someone we trusted - especially when it comes to the kids.
any advice greatly appreciated