I just wondered if anyone else is going to GOSH end of April? I am going with my daughter Hannah fron 27th April. She has EDS 3 and needs some help with pain control and strengthening her muscles ,which are very weak. We have only been to GOSH once before when we saw Prof. Grahame with Susan Mailard the physio.
If anyone can help who has been before i have a few questions
- Do the kids need trainers for the physio or do they just have bare feet?
- We are staying in the patient Hotel, is there a shower or just a bath in the bathroom?
- How are the rooms laid out? It says in the info you get a single room, does this mean i have to sleep on the floor? Sorry sounds like a stupid question but i will be in agony if i have to sleep on the floor
Well i hope to get top know you all better i am new on here, but not new to EDS !