Hey Loosebones...I don't know you or your particular situation, but right now I'm glad that dentist got sacked. From everything I've heard and read, surgery for TMJ dysfuction tends to exacerbate the problem. I guess there are some people for whom it works, but if any doctor or dentist recommended it for me, based my own experiences with it and what I've learned about hypermobility, I'd get a second opinion before scheduling surgery.
The most brilliant doctor I think I've ever had is my endocrinologist, who's pretty certain that my oral/dental problems, including the loss of a bunch of lower teeth due to idiopathic root resorption ("idiopathic" is a fancy doctors' way of saying "we don't know what's going on to cause this!"), is the result of the connective-tissue disorder! I was 47 and suffering from horrible plantar fasciitis for the first time (summer of 1998, during a public-transit strike) when a really good podiatrist told me, after examining me, that I was hypermobile. Silly me said, "What does that mean?" and she answered, "It means you're too flexible." I showed her a couple of party tricks and she just nodded and acted like she wanted me to stop doing that...I thought it was because I was interrupting her, but in hindsight I think it was more that she didn't want me to hurt myself. I know I had to sleep in a brace, a steel bar with shoes at either end, when I was very young, and my mother enrolled me in a kiddy dance class in hopes that it would improve my coordination, strength, equilibrium and agility (it didn't), but it never dawned on me that all of the above might be part of a disorder that certain other conditions, such as age and diseases like chronic kidney disease, primary hyperparathyroidism, thyroid cancer, menopause and extreme work-related stress (that's another story altogether!) would exacerbate.
I know plenty of people who have intermittent TMJ problems and are sometimes in a lot of pain from them, but I see them and watch them talk and it's clear to me that they aren't crippled by the pain. They might take a pain-killer for it and they might wonder if it's wise to chew, but they're able to chew if they're hungry, and they aren't in prolonged agony. Not that their pain is trivial, but I don't think it's as severe or as difficult to manage as mine can be. The people I'm thinking of are not hypermobile.
Barbara (taking a break from finishing my taxes...I know we thought we were fighting you because we didn't want taxation without representation, but I get plenty of representation and I STILL get taxed through the nose, so why did we fight that revolution, anyway?!)