Today I mostly be...

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Re: Today I mostly be...

Postby cracker » Mon Jan 21, 2013 9:35 pm

sending you & nicky lots of hugs :hug: :hug:




TMIB in lots of pain too it feels like i been hit by a double dekker bus :cry: :cry:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
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Re: Today I mostly be...

Postby PhoenixRising » Tue Jan 22, 2013 10:45 am

Hugs to madmum, nickb and cracker (((hugs)))

TIMB sore from walking the school run in the snow, and dealing with walking over to my mum's so we can help my disabled sister down the steep hill into town for a coffee. Neither of our roads are driveable and wheelchair for her is no help in this. I am not the best person for the job as I slip over a lot myself but at least have new boot ice grips although they are making my ankles sore as they make the boots less stable, can't win LOL. She needs to get out of the house, was stuck in yesterday and tomorrow may well not be any better, she is deaf and registered blind so can't occupy herself at home with books, tv, music etc so it can get a bit desperate.
HMS (diagnosed Feb 2012, aged 38): food intolerances incl gluten, allergies, asthma, IBS, GERD, RLS, hypoglycaemia

"Feelings come and go like clouds in a windy sky. Conscious breathing is my anchor." Thich Nhat Hanh
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Re: Today I mostly be...

Postby madmum » Tue Jan 22, 2013 1:25 pm

Thanks for the hugs guys. Been dealing with harleydog who has had kneecap problems again. Gone into school late. Had letter this morning complaining about absences due to medical and health......... :evil: Did they really want him in with norovirus!!!! Also we have to travel 53 miles each way to the hospital so he misses a whole day when we go.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby cracker » Tue Jan 22, 2013 7:15 pm

thanks for the hug phoenixriseing :bye:


my mate has the same problem with her littleuns school too madmum. i think schools need lessons in awaereness of ilnesees etc hope it sorted soon :hug:



TMIB in pain i was stuck at the bus stop for 40 mins in the cold ice & snow today the bus didnt turn up (again) :roll: :cussing: i found out from one of my friends i meet for a qiuck bite to eat before physio that someone kicked off on the bus earlier in the morning she refuesed to get off the buss & the police had to be called. :naughty: i got to the hosptail & i was in agony. i felt a bit better after a moccachino the it wrmed me up a bit. but i still in agony now & my apinkillers not working. :cry:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
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cracker
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Re: Today I mostly be...

Postby madmum » Tue Jan 22, 2013 8:09 pm

Hugs to Cracker. Have to tell you a story. Took Harleydog to school this morning and Bradley came. He watches as harleydog goes in,this time harleydog went in the front door instead of the side. As the doors slide shut Bradley barked loudly and tried to run to him. How devoted is that!
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby PhoenixRising » Tue Jan 22, 2013 8:47 pm

Made it to the cafe with my sister, so that was good, but means I spent about 3 hrs today walking around in the snow. Owwwwwww! Be nice to bea ble to think I'll feel better after a night's rest but as you know it's more likely I'll wake up extra seized up and in more pain. Just keep telling myself it's good exercise for my leg muscles!
HMS (diagnosed Feb 2012, aged 38): food intolerances incl gluten, allergies, asthma, IBS, GERD, RLS, hypoglycaemia

"Feelings come and go like clouds in a windy sky. Conscious breathing is my anchor." Thich Nhat Hanh
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Re: Today I mostly be...

Postby cracker » Tue Jan 22, 2013 10:22 pm

aww thanks madmum. one of my mates dogs does that when her little girls mini bus comes to take her to school one he treid to get on the bus. bradley is definety devoted to harly dog he got a good friend there. :hug:


i been seizing up a lot too this week phoenixriseing luckyly the council have gritted the paths now so i feel safer going out. :hug:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
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cracker
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Posts: 1415
Joined: Thu Mar 01, 2012 9:35 pm
Location: Rainham Kent

Re: Today I mostly be...

Postby trekster » Tue Jan 22, 2013 10:27 pm

TIMB pleased with myself, had mince, beans and rice in tomato sauce for dinner and got 4 meals for a £5 out of it! Made pastry and added some berries for my 'berry nice pies' hehe.
House is on the market and they are after a 2nd viewing already within a week. Trying to sort out paperwork and Stanmore transport this week.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: Today I mostly be...

Postby madmum » Tue Jan 22, 2013 11:08 pm

Good luck with the house sale trekster. :D
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby madmum » Thu Jan 24, 2013 10:14 pm

Delighted to say Harleydog has finally got a computer for school :clap: :dance: :D
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby cracker » Thu Jan 24, 2013 11:08 pm

nice one i realy happy for you harleydog :dance: :bye: :party: :clap:



TMIB suprised myself today i got 5 out of 8 spellings right & some were really hard :dance: :dance:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
User avatar
cracker
Carpal tunnel
 
Posts: 1415
Joined: Thu Mar 01, 2012 9:35 pm
Location: Rainham Kent

Re: Today I mostly be...

Postby madmum » Thu Jan 24, 2013 11:41 pm

Well done cracker :D :clap: :clap:
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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madmum
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Re: Today I mostly be...

Postby cracker » Fri Jan 25, 2013 8:11 pm

thanks madmum :hug:

TMIB was having a good day till i checked facebook when a crtitan friend keeps asking 'u got job yet' it makes me feel upset becose i cant work. she always been the bossy type so what do i do do i igore her or unfriend & block her? i told her what i got but she wont listein :cry: :cry:


i really need a hug right now :wall:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
User avatar
cracker
Carpal tunnel
 
Posts: 1415
Joined: Thu Mar 01, 2012 9:35 pm
Location: Rainham Kent

Re: Today I mostly be...

Postby madmum » Fri Jan 25, 2013 9:03 pm

Very big hug to Cracker :hug: :hug: :hug: :bday:
I would not contact her any more. I know how you feel about work,miss being able to and being more mobile.
Had a positive meeting today with the head of education especially special needs at the local council. Hopefully things may finally improve for harleydog at school soon.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby cracker » Fri Jan 25, 2013 9:37 pm

thanks madmum :bday: :hug:


i hope things get better for harleydog at school. i can remember my SENCO she was lovely so were my TA's when we was in the lerning support dept if we was upsset we had a cup of tea made for us. mrs wallace the SENCO made a lovely cuppa :hug:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
User avatar
cracker
Carpal tunnel
 
Posts: 1415
Joined: Thu Mar 01, 2012 9:35 pm
Location: Rainham Kent

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