Today I mostly be...

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Re: Today I mostly be...

Postby mazza111 » Thu Sep 27, 2012 12:20 pm

TIMB - AAAAAARGH!!! Thought Stacey's physio appointment was tomorrow, just discovered (in the last half hour) it's today at 1. Not answering fb, phone, text msgs, bbm, so have no alternative but to go bang on her window and wake her up lol
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Re: Today I mostly be...

Postby Superstottie » Thu Sep 27, 2012 4:40 pm

TIMB...seeing a fab Rheumy who understands! He has referred me to his specialist Physio, a Psychologist and also given me a prescription for Vit D as he says it's almost certain I will be deficient! He will call me back to see him when I have had some input from the other people and will then decide what we do next! He is also sending me out some info that he wanted to give me but didn't have with him! He has HMS himself so knows exactly what he is talking about - such a refreshing change!!! :dance:
Finally diagnosed March 2011 after 20 years of hypochondria!!!
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Re: Today I mostly be...

Postby Fluffym » Thu Sep 27, 2012 5:40 pm

Brilliant news, Superstottie. So glad you have found a medic in the know who sounds interested and compassionate. Guess it helps he has HMS too.

Fluffym :)
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Re: Today I mostly be...

Postby madmum » Thu Sep 27, 2012 8:14 pm

:evil: :evil: My son has been turned down for funding for his laptop,they say he is not needing it enough and must put up with pain for 2 years!! He struggles so much with his hands. Yet another fight. :roll:
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby cracker » Thu Sep 27, 2012 10:25 pm

can you get in touch with the LEA madmum or your locla MP? i think it the LEA but i not too sure. hope it helps & sending you & harlrydog gentle hugs :hug: :hug:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
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Re: Today I mostly be...

Postby madmum » Thu Sep 27, 2012 10:39 pm

LEA are who did it,the local council found £41'000 for ipads for local councillors but no money for a needy child :naughty: :wall: Will try MP again but he is useless. May try the local catholic diocese. Why does it have to be a battle all the time.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby cracker » Thu Sep 27, 2012 10:46 pm

that not faire. it a ggod idea to let the diosces know. it bad about the council getting all them ipads. your local LEA is a bit like the LEA when i was a kid. have you tried going higher than your local MP? hopw it goes well if u want to talk you can always inbox me x :hug:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
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Re: Today I mostly be...

Postby Neogetz » Fri Sep 28, 2012 9:13 pm

TIMB quite sore, started a 4 week back class on thursday so i'm hurting quite a lot. Rather annoyingly, one of the exercises hurts my knee so it looks like we'll have to tweak that one. Well, serveral hurt but one was really bad and has left an impression on it. Once it's over i'm signing up to an 8 week course of tai chi which my local hospital runs.

Hoping to make it out tomorrow evening for more dungeons and dragons, though i'm deading saturday night/sunday because of it.
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Re: Today I mostly be...

Postby HarleyDog » Fri Sep 28, 2012 10:05 pm

To all above i hope you all feel better soon.

TIMB tired and achey. Looking forward to tomorrow when i will hopefully getting a nice roast lunch. :D
Diagnosed in 2009 with HMS and other conditions.
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Re: Today I mostly be...

Postby sheppeyescapee » Sat Sep 29, 2012 12:46 am

Timb... feeling awful. My pain levels have been really high, nausea, dizziness, fatigue and so on :roll:
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Today I mostly be...

Postby cracker » Sat Sep 29, 2012 4:23 pm

TMIB sending gentle hus to anyone who having a bad time :hug: :hug:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
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Re: Today I mostly be...

Postby madmum » Sat Sep 29, 2012 6:30 pm

Thanks cracker. Hope sheppeyescapee feels better soon. I have been out for a lovely lunch with my son. We played in the garden with Charlie and Nicky which was fun. Now back to the normal mum things....
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby cracker » Sat Sep 29, 2012 10:04 pm

that ok madmum :bye: TMIB tired & achey still sore from the fall i had on the bus on tuesday. think i been overdoing it today. i think i be having an early nite tonite :naughty: :vsick: :sleeping: :inv:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
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Re: Today I mostly be...

Postby madmum » Sun Sep 30, 2012 1:18 pm

Hurting. Woke up with my shoulder blade feeling wrong. Breathing is sore and I ache all over. Had great plans to be busy,not going to happen now. :(
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
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Re: Today I mostly be...

Postby Superstottie » Sun Sep 30, 2012 2:03 pm

TIMB....having a lazy Sunday! Kids are supposedly cleaning their rooms, and the weather is awful so staying snuggled up inside and resting up for what will no doubt be another busy week ahead! Will make some Pizza for tea, then dunk kids in the bath and get an early night I think - managed to fall asleep for a little nap at half four yesterday afternoon, then woke at 10 when my alarm was going off for my tablets!! Oops! Still managed to sleep in until 10 this morning as well!! Think last week has definitely taken its toll on me!
Finally diagnosed March 2011 after 20 years of hypochondria!!!
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