Blogging, blogs, tumblr, twitter, facebook and so on...

Anything not covered by the above!

Moderators: gila, Blaadyblah, Rosie, Retro

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby DeeNJai » Tue Aug 09, 2011 9:05 am

Just to let you know that I have closed my facebook account as i have a call from my father this morning. He said he was talking to someone last night that lives very close to where I live. she isnt happy because her and her mum cant DLA. She was saying to my dad last night that she has seen me running around the estate after the dog when he has escaped. I wish that was true.
Dee
DeeNJai
enthusiast
 
Posts: 305
Joined: Thu Dec 02, 2010 4:37 pm
Location: Bath, Somerset

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby Englishgremlin1 » Wed Aug 10, 2011 9:31 pm

don't let the people of doubtfull parentage get you down! Hugs
If we can crack joints we can crack systems

Male diagnosed with Hypermobile EDS November 06.
User avatar
Englishgremlin1
Carpal tunnel
 
Posts: 1210
Joined: Sat Jun 30, 2007 6:36 am
Location: Cardiff

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby teaspoon » Sat Aug 13, 2011 9:07 am

I've been posting about being a disabled medical student at : www.disabledmedic.blogspot.com

=)
"Have faith" "I do. I also have fear, and a propensity to bruising." (H2G2)

Dx HMS in Jan 2011 by local rheumy, mum dx HEDS in Oct 2011 by Prof G. Dysautonomia with features of POTS, delayed gastric emptying, asthma.
teaspoon
Member
 
Posts: 89
Joined: Tue Nov 09, 2010 4:01 pm
Location: Scotland

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby hayles » Tue Jan 31, 2012 6:26 pm

hey, just wanted to let you all know i have created a blog http://www.tumblr.com/blog/living-with-hypermobilty

i wanted to create a space to vent, to provide information, awareness and hopefully to help others. I was a training mental health nurse before i deteriorated and had to leave, and i just wanted to help really. Hopefully i can put some of my skills to use, and if i can help just one person i will be happy.
Please check it out if you have time, its fairly new so please be patient.

Thanks Hayley :D
hayles
New User
 
Posts: 16
Joined: Wed Jul 20, 2011 8:24 am

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby sheppeyescapee » Thu Mar 08, 2012 12:21 pm

My blog has been updated about my horrible day in london for my upper GI testing - http://sheppeyescapee-thisisme.blogspot ... ondon.html
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1236
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby sheppeyescapee » Wed May 02, 2012 12:32 am

Seeing as it is Ehlers-Danlos awareness month I wondered if anyone else was planning on doing a blog post about it? I'm currently writing a blog post, might take me a few days to write but have made a start on it! :)
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1236
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby sheppeyescapee » Thu May 24, 2012 11:25 pm

I finally finished my blog post for Ehlers-Danlos awareness month - took me long enough!! - http://sheppeyescapee-thisisme.blogspot ... month.html
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1236
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby staceym04 » Tue Jul 03, 2012 11:02 pm

Hi

Just over a week ago I created a blog about living with HMS, working full time and being a new mum. You can follow my blog here: http://savouryourspoons.blogspot.co.uk/

In the 9 days it has been up running I've had over 1300 views which I thrilled about!

Please contact me through the page if you have a similar blog and I will link your blog to my page if you could return the favour

Stacey xx
Diagnosed April 2012 after giving birth to my beautiful boy. All the years of joint problems and pain eventually made sense! Follow my blog @ [url]savouryourspoons.blogspot.co.uk[/url]
staceym04
New User
 
Posts: 10
Joined: Mon Apr 30, 2012 1:09 pm
Location: Newcastle

Facebook group

Postby Smol » Wed Jul 11, 2012 3:00 pm

Hi All
I have created a very successful, completely private facebook group for HMSers. It's very informal and is great for letting of steam, or getting support at the moment you need it. here is a link for any who may be interested in joining us https://www.facebook.com/groups/191402067637298/
Sarah

Finally diagnosed 6/12/11 with HMS, raynauds, Cervical Spondylosis (3 prolapsed discs and bone spurs) Bulging lumbar disc and SI dysfunction.
Blog here http://hypermobilitysyndrome.wordpress.com/
User avatar
Smol
Member
 
Posts: 192
Joined: Thu Aug 18, 2011 1:49 pm
Location: York

Re: Facebook group

Postby sheppeyescapee » Wed Jul 11, 2012 6:00 pm

I'm already there :mrgreen:
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
sheppeyescapee
Carpal tunnel
 
Posts: 1236
Joined: Fri Sep 18, 2009 2:43 pm
Location: Stoke Gifford, Bristol, UK

Re: Facebook group

Postby madmum » Wed Jul 11, 2012 6:24 pm

Are you sure it is safe? Wary of facebook due to the horror stories.
Mum to son with hms,pain amplification,migraine,plantar fascitis,ibs.lactose intolerant,hayfever and numerous allergies. I have hms,arthritis,migraine,p.o.t.s,allergies,and others too numerous to mention. Acused of being mentally ill hence.....madmum.
User avatar
madmum
Carpal tunnel
 
Posts: 2315
Joined: Wed Feb 17, 2010 11:20 pm

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby Smol » Thu Jul 12, 2012 8:39 am

It's entirely closed from the public. messages show on your newsfeed but never on your wall. I set it up that way on purpose so I could rant, moan etc... so friends and family can't say all I do is moan.

which one are you sheppey make yourself known lol
Sarah

Finally diagnosed 6/12/11 with HMS, raynauds, Cervical Spondylosis (3 prolapsed discs and bone spurs) Bulging lumbar disc and SI dysfunction.
Blog here http://hypermobilitysyndrome.wordpress.com/
User avatar
Smol
Member
 
Posts: 192
Joined: Thu Aug 18, 2011 1:49 pm
Location: York

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby mazza111 » Thu Jul 12, 2012 10:45 am

I'm there too, but you can guess what one I am :p

Madmum, fb can be totally safe if you use it properly. Set all account settings to private and you're fine. That way you only add people you want to add :)
mazza111
nut
 
Posts: 446
Joined: Tue Mar 06, 2012 12:01 pm

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby BendyBoff » Sat Jul 14, 2012 10:11 am

Have just requested to join the group Smol. Thanks for setting it up! xx
Exeter, East and Mid Devon Group Leader - please get in touch for more information!
BendyBoff
enthusiast
 
Posts: 295
Joined: Tue Jul 14, 2009 7:14 pm
Location: Exeter

Re: Blogging, blogs, tumblr, twitter, facebook and so on...

Postby KaciesMum » Thu Sep 13, 2012 7:23 pm

ive got a Hypermobility UK Support group on facebook

feel free to join, link is below

https://www.facebook.com/groups/452074214819424/
Group leader of the HMSA Aberdeen group
KaciesMum
Member
 
Posts: 36
Joined: Fri Jul 08, 2011 10:34 pm
Location: Aberdeen, Scotland

PreviousNext

Return to Miscellaneous

Who is online

Users browsing this forum: No registered users and 2 guests