Pootje, could we have you translate those books into English?
I've used the HMS and EDNF brochures to help show the validity and significance of collagen defects. Recently when a coworker said, "Look at that finger!" regarding this year's EDNF brochure on the types of EDS, I told her mine could do that too and showed her. I think I told her I could also do the leg and arm things pictured and mentioned the skin (she'd seen me pull mine after asking me about a Dr. appt before). She told me I should march in my manager's office and have her read the brochure . She (my coworker) had no problem understanding my issues were real or serious, though, when I explained things initially without the pictures. I also showed the pictures to a man at lunch who thought Tinkle's book's cover illustrations looked merely like yoga pictures, explaining the difference of natural versus acquired flexibility, and showed him my thumb to my wrist and the drawing of this in Tinkle's book. Too often I show my joints a bit to try and prove this really is wrong with me; sometimes I don't though.
On Facebook I posted an album with photos and and a bit of explanation of the situation. Only some church members, friends, and a family member who said "You always were" when I told her (for reasons I can't remember) I was DX'd as hypermobile, can see the album. Plus I added a few links such as one to an article by Grahame on pain and hyperlaxity, plus photos to a few albums with people like us. That way there's some explanation, validity, it might help them recognize others like me, and I'm not repeating my tricks. I made sure I only showed tricks men could see... not showing the ROM in my hips, for example.
I haven't explained to my manager, supervisor, or many people. And I still can't decide how much, or whom, to tell.
My explanations have, like most of yours I suppose, varied quite a lot. Some of the more vague ones I've quit using (unless something like "I have trouble with my joints") because they don't add much insight or validity.