What do i tell em???????

[Guest]

i've recently been diagnoised wit Hyper Mobility Syndrome and still struggle to tell my friends about HMS? please can you tell me in the simpest way possible what HMS is?? so i am able to tell them why i don't do P.E any more

thank you

[LianneS]

The easiest way I tell people is that it is a condition that means that I am more flexible and this puts more strain on my body... I also equate it to arthritis (I know its not arthritis but people know what this is and it seems to be a similar pain etc)

Lianne

[Guest]

thank you

[Daeinera]

Before i had a diagnosis, I used to say that I had stretchy tendons.

[LianneS]

The main problem is getting the pain across, by saying about our flexibilty we're not really saying about the pain...there are plenty of people who are flexible and dont have pain....plus its difficult for people to understand the pain if they think its just down to flexibilty..thats why I often say about arthritis....

I basically tell people my joints are very flexible and because of that my body takes a lot on...and the pain is similar to arthritis...

Lianne

[Jai]

Az had a good way of explaining which I use if I want to tell people with a bit more description - Most people's joints are held by stuff like glue, it holds their joints in place. In HMS'ers, the collagen is like chewing gum - it stretches, so our joints move in ways they aren't supposed to. If you need to shut people up quickly, try 'my joints dislocate repeatedly for no reason' - it sounds so awful, they tend to leave you alone!
Love
Jai
xxx

[xblackrose831x]

I tell my friends that it's a disease that makes me really flexible and I get a lot of sprains and then I pull back my finger to show them how flexible I am...

It seems to work...