The Departments of Health currently have a consultation going into their proposed 'Long Term Conditions Strategy'. Find out more about it here:
http://longtermconditions.dh.gov.uk/about/
There is a page for public comments so please try to have your say, no matter how small, about what life is like with HMS/EDS and what you would like to see happen. The deadline for public comments is 15th June. They might not listen but it's worth doing in any case I reckon.
CSx

