Govt's 'Long Term Conditions Strategy' - have your say!

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Govt's 'Long Term Conditions Strategy' - have your say!

Postby curlysue » Tue May 15, 2012 11:38 am

The Departments of Health currently have a consultation going into their proposed 'Long Term Conditions Strategy'. Find out more about it here:

http://longtermconditions.dh.gov.uk/about/

There is a page for public comments so please try to have your say, no matter how small, about what life is like with HMS/EDS and what you would like to see happen. The deadline for public comments is 15th June. They might not listen but it's worth doing in any case I reckon.

CSx
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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby Englishgremlin1 » Tue May 15, 2012 7:53 pm

thank ypu - will have a look and think about it- the government have a strategy apart from cuts? :lol:
If we can crack joints we can crack systems

Male diagnosed with Hypermobile EDS November 06.
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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby gila » Wed May 16, 2012 8:34 am

thank you curlysue! will comment.
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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby barkingmad » Thu May 17, 2012 9:38 pm

Eeek.. Completed it but maybe I shouldnt have! :oops:
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Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby Englishgremlin1 » Fri May 18, 2012 9:04 am

I am still working on it in my head - it is a vast question and not sure I like some of the hints in it.
If we can crack joints we can crack systems

Male diagnosed with Hypermobile EDS November 06.
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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby curlysue » Fri May 18, 2012 5:32 pm

Donna, your comment was outstanding! I have added mine now too (under the initials 'CS').

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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby star gazer » Fri May 18, 2012 8:18 pm

Hi CS, will have a look and see what it is all about.
thanks for putting this up.
sg x
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Re: Govt's 'Long Term Conditions Strategy' - have your say!

Postby barkingmad » Sat May 19, 2012 6:39 pm

Thank you CS! Yours was fabulous!

keep it going folks...boring as is it is to do it, responding to consultations like this is the only way you are going to be able to attempt to influence management of your conditions :bye:
barkingmad (Donna)
HMSA SENIOR MEDICAL LIAISON OFFICER/ ADMINISTRATOR
Retired RMN, HEDS, Fibro,
3 children,
eldest son, HEDS, dyspraxia, IBS, ADHD, ASD
middle son, HEDS,
youngest daughter HEDS, dyslexia
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