feel the cold

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Re: feel the cold

Postby church mouse » Mon Apr 09, 2012 3:43 pm

Just when I was thinking I had got my head around this HMS thing I am finding there are more symptoms that are connected. Such a reassurance to know that others struggle with feeling cold when everyone else is comfy, with muscles spasming after going swimming so losing ALL the benefit of the exercise, and also the references to autism. So maybe I'm not an attention-seeking hyperchondriac after all!
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Re: feel the cold

Postby Fluffym » Mon Apr 09, 2012 6:24 pm

Hi church Mouse,

If it gives you any comfort, you are not alone and certainly not the only one to have been called an attention seeking hyperchondriac! I think many of us have doubted our own sanity at times with the bizarre symptoms this syndrome can give.

Take care.

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Re: feel the cold

Postby barkingmad » Mon Apr 09, 2012 10:15 pm

Churchmouse you are most definitely not a hyperchondriac.... :D
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Re: feel the cold

Postby cracker » Tue Apr 24, 2012 9:23 pm

i feel the cold too sometimes my right foot feels like a block of ice.
i wear one of my snuggies & the gas fire is on & i still feel the cold. i get cold hands too i sitting hear felling cold now brrrrrr :vsick: :sheep:
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
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Re: feel the cold

Postby trekster » Wed Apr 25, 2012 12:27 am

if I could work out what was causing me to be so cold, I would be a much happier bunny. Milk thistle has helped in a way,
eating properly another way, unsure if it's a side effects of gabapentin and co codamol.

I know overload and stress doesn't help matters and with my CPTSD being triggered off that is a major problem for me
at the moment. It's as though ive got permanent 'shivers down my spine'.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: feel the cold

Postby balot » Wed Oct 24, 2012 10:44 pm

I get cold really easily. My doctor said this is common with HMS.
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Re: feel the cold

Postby gila » Thu Oct 25, 2012 10:58 am

grrrrrrhhh...sorry pet rant coming up :lol: ... although temp wise it isnt actually cold atm... the ridiculously high levels of humidity atm make me feel v v v v v cold and certain bits of me are v v v v v cold to the touch...hate this weather!!!!
xxg
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Re: feel the cold

Postby cracker » Thu Oct 25, 2012 3:49 pm

i really feel the cold one of my fiends keeps saying my hands are like ice cubes
Diagnosed with HMS July 2011. at age 31by my physio & HMS EDS3 & pots the 28 March 2013 age 32 by Prof Grahame.
i have a good sence of humer
dyslexia,asthma ,mild learning disabitys ,mild ibs,mild scoliosis and
part time cruches user x
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Re: feel the cold

Postby Jess » Thu Oct 25, 2012 7:31 pm

trekster side affects of the meds is not coldness.

I find wrapping in layers helps keep me warm knee high socks with coolmax hiking socks over top to keep my feet from over heating. Vest top then tshirt or shirt over top then a zip up top over it. With fleese coat for going out. I have silk gloves for going under my every day gloves.
I feel like a bowl of Rice Cripsies!! I'm snap, crackling, popping everywhere!

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Re: feel the cold

Postby trekster » Sun Oct 28, 2012 12:54 am

Thanks for the reassurances Jess I am starting to thing this is likely to be POTSy or related issues.
been told coming off the co codamol (which I am) can cause chills, but this feels very different.
As Hannah would say 'your temperature control is off' in her 'you know you have POTS' book.
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: feel the cold

Postby Jess » Sun Oct 28, 2012 11:03 am

Trekster try eating more ginger, it has helped me recently with the drop of temp this week. Holland and baretts do really nice sweets that are free from most of the bendy trigger food including dairy.
I chew a sweet when im walking the dogs when I walk the dogs in the afternoon/ evening
I feel like a bowl of Rice Cripsies!! I'm snap, crackling, popping everywhere!

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Re: feel the cold

Postby trekster » Sun Dec 09, 2012 1:57 pm

Thanks for the reminder Jess, bought some Rochester Ginger drink the other day which really helps on my really cold days.
Also ive got a vacuum flash to take drinks out in :D
Alexis

Aspergers, Fibro, OCD, C-PTSD, insomnia, dyslexia, raynauds, mild carpel tunnel, gluten and dairy intolerance
part time wheelchair user.

HMS diagnosis 27/9/11

Feel free to PM me about adult autism social groups in the Bristol and Bath area.
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Re: feel the cold

Postby raewire » Tue Jan 29, 2013 12:11 am

I'm another who feels the cold. My family are always commenting on what a Nesh person I am. However, my nan is exactly the same & mum has an under active thyroid, so can't regulate her body temperature either. We keep each other company in the jumper wearing stakes and at least it means that regardless of which house you visit you're guaranteed to find the heating on!
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Re: feel the cold

Postby Inertia Creeps » Tue Feb 12, 2013 12:58 pm

It's odd. I don't so much feel the cold as actually am cold! Hands and feet particularly, but quite often my legs and arms too. I have shockingly bad circulation, so it's probably down to that. :roll:
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