The Procedure on my thumb/extensive info on thumbs

All threads related to thumb, finger and hand surgery.

Moderators: gila, Blaadyblah, Rosie, Retro

Postby Blunderwoman » Tue Feb 07, 2006 3:36 pm

Hi all

Unfortunately Hannah's op may not have worked. She dislocated her thumb again and it has been put back in plaster until we can see her consultant on Friday.

Sententia, we have looked into silver ring splints but the joints that are affected are not ones that would benefit. Thanks for the thought though.

Claire, I think Hannah may have to learn to live with her thumbs dislocating but at 15 years old that it is quite hard and I feel that we should consider every possible alternative. You need to use your hands so much and I get quite worried when I think what the future will hold for her. At the moment she cannot plan what she wants to do as a job as we dont know how much she will be able to use her hands as she also has a lot of problems with her fingers, wrists and elbows.

Anyway I will keep you posted after Fridays hospital visit.

Take care

Pauline
Diagnosed with JHS 2005,Daughter (17) diagnosed with JHS 2005
User avatar
Blunderwoman
Member
 
Posts: 121
Joined: Fri Jul 08, 2005 12:46 pm
Location: Essex, England

Postby LianneS » Tue Feb 07, 2006 3:53 pm

Let Hannah know we're thinking of her

Lianne
LianneS
 

Postby Sue New » Tue Feb 07, 2006 4:35 pm

Dear Pauline,

I am so sorry to hear that Hannah's thumb is still dislocating. Please send these :hug: and :sorry: to her from me.

Good luck on Friday :pray:

Sue.
"When you hear hoof beats..." now available from the online shop.....
Image
User avatar
Sue New
Carpal tunnel
 
Posts: 1668
Joined: Sun Oct 31, 2004 9:55 am
Location: Hampshire

Postby nonyanomemory » Tue Feb 07, 2006 5:09 pm

Dear Pauline,

I haven't time to post much but I just wanted to say I am thinking of you both. Will pm later if I am able.

double :hug: for you both.

Nonya
46yr female EDS H/mobility Type c/over vascular Dxd Prf G
V Prem club ft short stature early onset varicose veins thin skin
Striae o'rthritis/porosis PHN POTS spasms n'pathic pn IBS bladder stuff bulging discs & more!

d/tr severe EDS 20 yr
nonyanomemory
Carpal tunnel
 
Posts: 2191
Joined: Tue Aug 17, 2004 9:55 am
Location: uk

Postby vickers » Wed Feb 08, 2006 12:38 pm

Oh no poor Hannah and poor you. Am thinking of you both and hope it goes well on Friday. :hug: :sorry:
vickers
 

Postby Hannah_Banana » Wed Feb 08, 2006 10:36 pm

Hi All

Im starting to think that my operation hasnt worked at all.Last night i had a really bad night sleep.My fingers (on my operation hand (right one) kept on dislocating alot and they felt really really loose.My fingers normally dislocate alot but last night was just the worst.Today they've been dislocating many times and not been able to manage alot of things.Typing this is a challenge as they keep popping out so im going to have this as short as possible.Unfortunatly tonight has got me down alot,It feels like the tendon has snapped inside the cast :cry: it really hurts.A few weeks ago i tore a muscle in my foot and this feels exactly like it but 100x worse. :cussing: i feel majorly stressed out with it as i really hoped and prayed that the operation would be a success as i wanted my thumb back to normal.Having both hands in plaster,extreme pains in my hands and dislocating fingers makes me want to cry as its gotten me so down :wall:

Take care all

Hannah xx
Diagnosed HEDS,16th september 2005

"This...Is My Body,
No Matter How It Tries To Disable Me
Yes,I'll Still Be Here"
User avatar
Hannah_Banana
Member
 
Posts: 93
Joined: Wed Oct 12, 2005 3:26 pm
Location: Essex

Postby nonyanomemory » Thu Feb 09, 2006 12:42 am

Hi Hannah hun,

I can only say I understand how you must be feeling. It is so hard for you right now. I am not surprised you want to cry. Crying isnt bad Hannah I think its a natural response to the frustration and justifiable anger you are feeling right now. I do think you need to speak to a medic about pain as it is simply not fair that you have to go through this without adequate pain relief. Even if they can't do anything at the hospital would it be worthwhile going to your gp to say just how much this is affecting you and to see if there is anything that he/she can offer to alleviate the pain. I think you must be doubly frustrated because your mobility is so impaired having both hands in casts. This is such a strain on all of you right now.

I know this may sound really really silly but while you are waiting to find out the outcome of the operation. Would it be possible to think of some ways that could raise your spirits. I completely understand that you are not able to do lots of things at the minute so we here are all going
:help: Hannah out here peeps with suggestions to have to put our thinking caps on to think of fun things that you can do. Now one thing that springs to mind is a proper massage or a new haircut some relflexolgy or maybe some acupuncture. Massages and haircuts etc can be got at local colleges for much reduced prices. I know these things won't change stuff with your hands for you Hannah but they would serve as a distraction. Even knowing for example that next Monday you were having a facial or a foot massage may be something to look forward to.

I wish I could wave a magic wand for you Hannah and have your pain so that you didn't have it I would if I could. I know it may sound silly but it won't always be like this Hannah. You will find a way forward because you are strong and you are brave and you are one of the most positive people. Right now it is so tough for you but I am pleased you have these boards where you know you can say it how it is and we will listen and understand. I hope tonight you manage some sleep as lack of sleep in itself is enough to make anyone cry. Take care Hannah and tonight everyone here I am sure who knows you is wishing you well.

:sorry: Nonya
46yr female EDS H/mobility Type c/over vascular Dxd Prf G
V Prem club ft short stature early onset varicose veins thin skin
Striae o'rthritis/porosis PHN POTS spasms n'pathic pn IBS bladder stuff bulging discs & more!

d/tr severe EDS 20 yr
nonyanomemory
Carpal tunnel
 
Posts: 2191
Joined: Tue Aug 17, 2004 9:55 am
Location: uk

Postby Rosie » Thu Feb 09, 2006 1:03 am

Hi Hannah

Sorry to hear life is so frustrating and painful for you at the moment.

How about treating yourself by hiring a DVD that you've always wanted to watch but never got round to seeing?

Or borrowing talking books from the library? I love reading but can't hold books for long when my wrists and thumbs or bad, but these are like having somone read a book to you.

Hoping you have better times soon

:bye:

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
User avatar
Rosie
Moderator
 
Posts: 3298
Joined: Fri Jun 24, 2005 8:58 pm
Location: Brighton area

Postby vickers » Thu Feb 09, 2006 1:58 pm

Hi Hannah, :sorry:

Rosie's suggestion about the talking books is a good one, I find listneing to them helps me get off to sleep as I close my eyes and picture everything as it's said.

Have you tried meditation? It takes a while to get the hang off but the good thing is you can practice it whilst lying down (another thing that sends me to sleep). It can also help with the pain side of things as a distraction technique.

I really hope you have a better day today hun :hug:
vickers
 

Postby Guest » Fri Feb 10, 2006 8:38 am

Hi Hannah,

I'm new to the boards and have been following your surgery since December. I've been hoping for the best for you all along. It doesn't count for much, I know, but someone in SLC, Utah is thinking of you and rooting for you.

Best,

Beatrice
Guest
 

Postby Retro » Fri Feb 10, 2006 1:12 pm

Awww Hannah :hug:
User avatar
Retro
Site Admin
 
Posts: 3577
Joined: Sun Sep 25, 2005 9:00 pm
Location: Invergordon, Scotland

Postby vickers » Mon Feb 13, 2006 12:17 pm

How'd it go Friday Hannah?
vickers
 

Postby Hannah_Banana » Mon Feb 13, 2006 12:41 pm

Hi all

They took my right cast off and found out something that suprised me ( :shock: ).I saw ///Surgeon// and he examined my thumb as he knew it had been dislocating.He took a while to pull my thumb about and then said "The tendon's holding up well but the thumb is dislocating slightly but the tendon is stopping it from coming completely out".I was expecting him to say that the tendon was holding the thumb so it wouldnt dislocate at all.I suppose it is good news but still not sure whether the operation is a complete success.Im just praying ( :pray: )that the operation is a success as i dont want a fused thumb.

Take care all

xoxo Hannah oxox
Diagnosed HEDS,16th september 2005

"This...Is My Body,
No Matter How It Tries To Disable Me
Yes,I'll Still Be Here"
User avatar
Hannah_Banana
Member
 
Posts: 93
Joined: Wed Oct 12, 2005 3:26 pm
Location: Essex

Postby vickers » Mon Feb 13, 2006 1:00 pm

Hannah,

That's better than it could've been eh? Maybe you will be able to do some physio to strengthen that tendon when you've healed a little more? Very glad to hear it isn't fully dislocating again, thank you for letting me know, have been wondering all weekend how you got on. :hug:
vickers
 

Postby Hannah_Banana » Tue Feb 14, 2006 10:39 pm

Hi all

I've got a physio appt. in a few days to start building up my muscles.i only wear my splint at night now which is good.I went to town today without the splint on and found some fab wrist warmers (they look like a corset :D ) that cover up my scars while looking great.Im gradually accepting the fact that my thumb will dislocate but i'll have to put it back in myself.As with the other thumb thats in plaster,im not sure what the futures like for that one but the one thing i can see is-operation.But if it does need the operation,im 100% prepared.All i want is to be able to have normal (ish) thumbs again.

Will report back after physio or this fridays fracture clinic appt.

Take care all

xoxox Hannah xoxox
Diagnosed HEDS,16th september 2005

"This...Is My Body,
No Matter How It Tries To Disable Me
Yes,I'll Still Be Here"
User avatar
Hannah_Banana
Member
 
Posts: 93
Joined: Wed Oct 12, 2005 3:26 pm
Location: Essex

PreviousNext

Return to Thumbs, fingers and hands

Who is online

Users browsing this forum: No registered users and 1 guest