I had a very "eventful" pre-op appointment today (what's new I hear you all groan
My hubby dropped me off at the hospital at 8.30am for my 9.15am appointment (on his way to work) so I killed some time having a coffee and a danish (naughty
) . I went up to the ortho ward at about 9am only to be told my name had been on the list but it had been taken off as my date had been changed
Basically, it transpired that the weird letter I got some time back saying that my "suppossed" op with the hand surgeon had been changed, was actually telling me that my knee op date had been changed and was no longer being done by the specialist knee man but by the locum hand surgeon "who sometimes does knees"
I actually spoke to the hand surgeon at the time and even he thought this letter was regarding the carpal tunnel release - how confusing
. I also showed the letter to both the hand and knee surgeons (at this stage I had 1 op booked for 17th Jan and another a week later which just was not feasible) and it was agreed that the Carpal Tunnel Release would be postponed/cancelled and they would go ahead with the knee op as this was more important.
Eventually I got to see someone in the booking dept and explained that I did not feel very comfortable having the knee op performed by a hand surgeon who did not know all my history - particularly as I have EDS. It all got sorted eventually but the soonest the proper knee surgeon can do the op now is Jan 26th (only 2 days later so that's not too bad).
Anyway, as is normal by BP was really high - the 1st reading was 150/90 and then when they took it a bit later it was 162/108. I explained it goes from really high to really low and they have made notes about this on my file to show the anaesthetist. I explained all my health problems to the Junior Dr and gave a copy of my health history on CD Rom as well as a copy of the EDS "All Types" CD Rom produced by the EDNF to the Senior Nurse. She commented that whenever they have EDS patients they always come in with lots of info, but she had not seen the CD Rom before so was pleased with that. I asked if they saw many EDS patients and it seems that one of the knee specialists there (funnily enough the Dr who did my previous 2 arthroscopies, before I was diagnosed with EDS) had a spate of EDS patients a while back as they kept being referred to him. I won't mention his name as it will probably be edited out, but he is quite a well known "knee man".
Anyway, I did eventully get to see the main knee consultant and he said he remembered me from my 1st appointment last August (it is always nice to be remembered isn't it?). He said my knee problems are "significant" and although he thinks having the arthroscopy will help tidy up some damage for a while, it will not be a long term solution and I will require a replacement further down the line
. He is pretty sure I will notice some improvement though otherwise he said he would not recommend doing it.
It is 5 years since my last arthroscopy and at that time I was due to have a lateral release, but the op was cut short due to BP problems. He told me to be prepared that he may perform the lat release this time so I may have to stay in over night if that is the case, and this will also mean a longer recovery period
He said I have "J angle" mal-tracking of the knee (whatever that means)and he even went so far as to say "he felt sorry for me" - he wasn't being patronising - he sounded quite geniune. I really like this consultant actually. He seems very thorough and caring
He also commented on the fact that he will be sure to take special precautions during the op due to my EDS.
He asked me if I experienced any numbness and I said I get a lot in my legs and arms and showed him where and when I get it. A lot of my problems seem to be stemming from my lower back and he asked if I was seeing anyone about my back in particular. I explained Dr Hakim is about to refer me to have a Back and Neck MRI. I later heard him talking into his dictaphone saying after my op I need to have the Lumbar and Cervical MRI's asap due to suspected Spinal Canal Stenosis
Anyway, that's the short
version of today's events - I was there for 5 hrs all in all
Le's just hope that the anaesthetist is happy to go ahead with my surgery this time
- watch this space .........
Take care all,