after reading the 'knee surgery' forum and seeing just how many of us have problems with our knees, i was wondering if anyone has any knowledge on the above? i was diagnosed with pigmented villo-nodular synovitis (pvns) following an arthroscopy after a couple of trips to A & E with severe pain and swelling. pvns is a "series of small tumours" on the synovial membrane behind my kneecap, but can be present in ANY joint in the body. pvns is described as being linked to 'severe trauma' e.g. being in a car crash or being knocked over. however, being hypermobile, i am now wondering if my pvns could be as a direct result of constant over-bending and knee-joints moving way too much in every direction since i was born? it probably didn't help that i was very active as a child and was very into gymnastics (bendy is good in gymnastics hehe) and then went on to spend a lot of time in the gym as a young adult, fighting through pain because i just put it down to 'no pain no gain', and although it had been commented by family and doctors that i was 'double-jointed', hypermobility was never 'diagnosed' until i was about 26. just wondered if anyone else here has had pvns diagnosed and treated and know whether it CAN be as a result of hypermobility? i've had a mixture of chemo- and radiotherapy twice, but sadly it didn't work at all, gave no relief, and i feel like i've been given up on now
i'm new to this site, and finding out so many things that i didn't know, about pain management, specialists, different surgeries etc, and this new information has got me querying MANY things now, that i suppose i've just 'accepted' through life; the pain, the sleepless nights, the tense muscles, the aching body, depression etc. i've always felt like i am 'bothering' the doctors when i go to them, especially for things like the above that can sometimes (to others) appear 'invisible'. i'm planning to go back to my gp next week, to ask for stronger meds and possibly a sleeping 'aid' too, and am properly planning the appointment, and writing down all the things that i want to ask, so that i don't leave without mentioning something - cos there are MANY things (which i believe are ALL linked to hypermobility). i am determined now to find answers and to get decent medication and to finally (hopefully!) after at least 13 years that i can recall, have some pain-free days and some SLEEP! x
I'm going to do just that - book a double appointment - hoping to get the 'nice' doctor, who's a regular at our surgery, instead of the ones who come in at odd times and know NOTHING about my medical history. I'm really putting a lot into my appointment planning, cos I feel I have so much to say, to ask, etc. Anxiety and depression doesn't help in the "thinking am bothering the doctors", but I really need to get past that and find some answers and stronger medication for myself. Am currently on Co-codamol, Diclofenac and Fluoxetine anti-depressants, but have been on the first two for 13 years now 
xxx