by nemonie » Thu Jul 26, 2012 3:17 am
We have a thread or two on knee braces, if you use the search tool to look for this. I recommend someone to teach you how to transfer by yourself, this will probably be the occupational therapist. They may be able to provide some aids to help with this as well. Have you tried or been advised to try hydrotherapy to slowly build up your strength in your knees. You can also get resistance machines, such as reclined bikes - these are often just little pedal machines that you can use when sat in your chair/wheelchair. Speak to your physio/OT about your options.
In regards to your knees, it's more likely that you have lost muscle tone in your legs. Us bendies tend to use our muscles to stabilise our limbs/joints because our tendons and ligaments are too stretchy. It isn't possible to fix the tendons/ligaments but we can tone up and build up our muscles, thus stabilising the joints. It sounds like when you became ill with the virus, you probably lost a lot of muscle mass, particularly in the legs, which meant that everything has just become very floppy.
Finally diagnosed with EDS-H and POTS after 20 years by the lovely Prof G \o/
Group Leader for Teesside & Co. Durham