by Rosie » Fri Nov 02, 2012 10:54 pm
Hiya
It is good to knlw that one class of children at such an important stage of their development have someone looking out for hypermobile problems.
I can understand your concerns, if you have a read through this thread you may find some ideas that will help, but I would like to suggest a few other things as well. Have you thought about contacting 'Access to Work' as they specialise in this kind of thing, and will cover anything that helps you to do your job and stay in work. When I had my assessment I was aked if it would help me to have someone with me for a number of hours a week to carrry stuff around for me, so they may be able to cover things like cutting and gluing etc. There is a thread about 'Access to Work', try the search tool if you can't find it.
Would it help to have stickers with standard comments printed on them to sue for marking? Or you can get stampers that you put your own type on. I have seen both stckers and stamps used with a number of comments or marks on, and the appropriate one ticked or circled, you could print your own quite easily. If you think your handwriting or use of the stickers will be strange for the parents, you could consider sending them a note with a short explanation.
It is common for us to develop patterns using the wrong muscles and can take a long time to re-educate them. There are lots of different splints, grips and pens that you may find work better for you.
Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!