Hi, I'm new here and not yet formally diagnosed.
However I have a really unstable pelvis and am much indebted to my lovely friend and osteopath who has very gently, patiently and repeatedly released the tight psoas muscles in my pelvis, (after three years of pain and going to NHS physio). I have also found since reading up on the whole HMS/EDS subject, that what has eased the pain a lot is using a back support chair in the car, I carry it around and use it on all chairs. It is absolutely marvellous, the guy that sold it to me at the local back care shop (who actually knew about EDS) also suggested a gadget that 'locks' the seat belt and gives you support whilst driving so you're not sliding around in the car, it was developed for use by racing drivers to counteract the G-forces they experience whilst racing. I didn't get it at the time as I was feeling guilty about the money I was spending on the chair, but I'm so impressed with the chair I will go back and get the seat belt thing as well. The other thing which has really helped me is some cushioned pads inserted in the heal of my shoes, that has helped so much with family outings where walking and standing about is unavoidable.
migraines, fatigue, multiple chemical sensitivities, gluten and lactose intolerance, bursitis, ulna nerve pain, hypermobility, and possibly POTS.
Finally Diagnosed with HMS/EDS on 5th September 2012 by Professor Grahame