Sacroiliac Joint!

[bendyneck]

Hi, I'm new here and not yet formally diagnosed.

However I have a really unstable pelvis and am much indebted to my lovely friend and osteopath who has very gently, patiently and repeatedly released the tight psoas muscles in my pelvis, (after three years of pain and going to NHS physio). I have also found since reading up on the whole HMS/EDS subject, that what has eased the pain a lot is using a back support chair in the car, I carry it around and use it on all chairs. It is absolutely marvellous, the guy that sold it to me at the local back care shop (who actually knew about EDS) also suggested a gadget that 'locks' the seat belt and gives you support whilst driving so you're not sliding around in the car, it was developed for use by racing drivers to counteract the G-forces they experience whilst racing. I didn't get it at the time as I was feeling guilty about the money I was spending on the chair, but I'm so impressed with the chair I will go back and get the seat belt thing as well. The other thing which has really helped me is some cushioned pads inserted in the heal of my shoes, that has helped so much with family outings where walking and standing about is unavoidable.

[bendyneck]

P.S. have also found regular use of the steam room at the gym after Pilates classes or swimming is very helpful, and a lot less stressful than a sauna!

[mcbeauty]

Funnily enough I find the office chair I have in front of my computer is the most comfortable, it's one of those swivelly types, it's best if I sit forward with knees apart and my legs bent under the seat and feet resting on the base, a bit like the position those ergonomic chairs have you sitting in, the ones where you're actually kneeling on a support bit. Even then though I think what's key is to get up and walk around regularly.

[Louisem1982]

I am looking for some advice..... for years I have been suffering from an intermittent but ridculously painful lower pelvis. The pain comes on suddenly and has me doubled in pain. I've been to the GP on numerous occasions, have been referred for ultrsound but they have no idea what is causing it. Is this HMS related? If so is there anything I can do to help it? Hoping someone can help xx

[Superstottie]

Hi, Do you mean that its like a period type pain, or do you think it could be your pelvis? There are a few threads on pelvis problems - http://www.hypermobility.org/forum/viewtopic.php?f=4&t=5869&p=200402&hilit=pelvis#p200402 and some others if you use the search box. I have terrible problems with my pelvis - feels like I have been kicked where you shouldn't be! When I was pregnant it felt like I had a varicous vein down there, but later realised it was my pelvis - the joint at the front was basically coming apart. This now happens every month in the week coming up to my period. I also get terrible pain around the back of my pelvis area which is also due to the pelvic joints moving - this is caused by hormone changes pretty much the same as it is in pregnant women, as our bodies seem to be much more sensitive to hormonal changes. I have found that the IUS has helped a little as I don't seem to have such big changes in levels, but everyone is different and some find it worse. Are you on the pill etc??

[Louisem1982]

what you've just said about being kicked has hit the nail on the head..... i've never been pregnant and i'm taking the pill...... just wish there wsa something i could do as it's really painful xx

[isotope]

Yes, I also get this problem, though for me it started when I was pregnant and whilst it did get better within 4/5 months after giving birth it reoccurs to some extent quite often. I'm suffering now as it happens, I was just up in my loft stepping over and around things up there and it's aggravated something/something has shifted and the pain has started.

I've got no advice, mine usually settles down on its own after a while and meantime I try to avoid doing things that make it hurt the worst. I hope you find some relief.

[Superstottie]

Louise, it sounds like its your pelvis then, does it coincide with your cycle? Might be worth you trying either a different kind of pill or other form of contraception if it is really bothering you. I also have a pelvis belt - think it is a serola?? It really helps when my pelvis is feeling really loose! It was suggested to me to try a wide belt (luggage strap) to see if it helps before spending lots of money! You just wear it over the bony bits of your hips at the front and it holds everything tight. x x