Hi all! I think I might have posted on this a long time ago, but can't remember now...having a senior moment!! Apologies for the lenght of this post...!!!
Does anyone else have problems with collasping legs? I am 45 and was diagnosed in 2000 with HMS, but also have osteoarthritis in my spine, (spondylosis/spondylitis), Polymyalgia Rheumatica (an inflammatory arthritis which affects back, hips, knees and shoulders), several whiplash injuries over the last 10 years, narrowing at L1-2 and a bulging disc at L5-S1, as well as lots of other chronic problems elsewhere such as shoulder impingement syndrome, chronic bilateral tendon inflammation in shoulders and elbows, etc etc etc..YAWN!!
I used to get problems with my legs collasping years ago, but that stopped, and have only had it happen occasionally since then. However, I had a car accident in the summer (yet another non-fault accidnt where someone fell asleep and went into the back of me TWICE on the motorway) which seemed to hit mainly my middle and lower back with the whiplash(I happened to have my soft collar in the car and put that on imediately which seemed to help the neck). I was taken to hospital on a spinal board because my neck and back pain were really bad, even tho I told them I had a pre-exisitng condition, and was left strapped with my legs flat out for several hours while they checked me out to see if there were any fractures, which thankfully there weren't! Lying flat out always really hurts my back, and this was no exception, so by the time I had been in hospital for a couple of hours, my lumbar spine was the most painful...
Since that time my back has been markedly worse, probably due to the whiplash, which my physio has been treating, but a couple of months after the accident, on a particularly stressful tour aborad with work (I am a violinist in a major symphony orchestra)where I had to do a lot more walking and rushing around than I can normally do, my legs suddenly started letting me down and i kept finding myself on the floor. I now use a walking stick on a permanent basis, but folk at work do not understand at all, and rarely see it happen (my legs collapsing) because I don't have to do too much walking backstage at work.
Anyway, i am wondering if anyone else experiences this? It is extremely embarassing for me, and I can't predict when it will happen, except it is much worse when I am tired. I think it may well be connected to the HMS because my back is extremely unstable due to years of over-manipulating by an osteopath when I didn't know any better!! So things move in and out very easily, and my physio has told me (as has another GOOD osteopath!) that I must never be manipulated because I am so unstable and have so much inflammation. My lumbar facet joints are very inflamed, as are my sacro-iliacs, but I still have a feeling it is more connected to the HMS and things moving in and out and trapping nerves. I get a lot of sciatica as well.
I have just had a lumbar MRI and am seeing an orthopaedic Dr about what is going on, and am being referred to yet another rheumatologist in connection with the car accidnt and my personal injury claim, but my physio wonders if I might have a spondylolythesis/spondylolysis as a result of the accident, and you can onyl see that sort of injury on a particular type of x-ray taken at a particular angle.
I would feel much better if I knew that I am not the only one out there with this problem!! It has brought it home for me tonight because my legs collapsed at work tonight unexpectedly just before I was going on stage for the 2nd half of the concert, and it really knocked me for six, as well as being humiliating, because people thought I had fallen over or tripped, and I can't sya 'this is bieng caused by...' I can only try and explain!
I have been less and less mobile over the last few years now, but this is getting ridiculous, and is ultimately threatening my career, especially touring abroad, due to the walling and lots of stairs etc (oh yes, having to walk up stairs makes it much worse!) I am sitting at the computer now feeling very sorry for myself and hurting sooo much, even after taking tramadol tonight, so sorry if this is a moaning message, but I am just after some reassurance and possibly info to take to the orthopaedic doc and the accident rheumatologist.
You will be pleased to know, on a positive note, that I am applying for DLA, even thio I know I will probably be rejected 1st time! I can just about manage getting around at work (most of the time if I am careful and go at my own speed), but cannot really go out anywhere else unless there is a mobility scooter to hand!
hoping everyone is having a lower pain day than me,
God is my refuge and strength: a very present help in times of trouble (Psalm 46v1)