Body twiches/funny turns anyone?

[LazyHaze]

That's really weird, I have the same thing when I'm falling asleep, like I'm either falling or sinking into my bed or if I'm sitting still can close my eyes and relax I feel like I'm falling off, always when I'm just falling to sleep so it completely wakes me up and scares me.

I also have a lot of fasciculations all over my body, should I tell some one? I have loads of other weird goings on too.

[loosebones]

SOS:

I've been having major problems with my body having funny turns and spasms since NYE.
Since NYE I've been in and out of A+E 2-3 times a week with full body spasms that have left me with multiple dislocations. I've had some really bad treatment, sometimes they have even refused treatment. All they do in the end is end up knocking me out to relocate the joints that have dislocated from the spasm...the sedation then stops the rest of the spasms and when I come round again I get sent home.
The problem is now that yesterday once I had come round and my shoulder had been relocated, the team came round to speak to me about my mental health - they think my history of possible borderline personality disorder is the cause of me 'wanting' to come into hospital so often and thatI want the attention and drugs. I have also been accused of having an eating disorder as I'm not able to eat proper food due to my stomach not working. They think I need to see a psychiatrist. There is no hurry to look into that either.

I'm underweight and malnourished - could this be causing the spasms?
Also when I lie down or recline, I get twitches in my central back. My Osteopath thinks the problem is neurological.

I can't continue like this and I'm now scared to go to the hospital when it happens even though I'm in excruciating pain and contorted into odd positions with the spasms. My own pain relief doesn't work and I'm now left on my own. I'm so fed up - no one is taking me seriously - I know when I'm not well and right now I know I'm really unwell but no one is listening. I need an urgent colonoscopy but have to wait for my GP to get the letter requsting it from my consultant I saw only last week and how long do those letters take to get through>

[Spireite]

Loosebones, you are having such a bad time.
When I was at my worst I couldn't lie on the floor without setting off muscle twitching and spasms to the disbelief of the sergeant major physio who ploughed on regardless.

Yes I would say your digestion problems could definitely be contributing. I was very surprised to find that despite my good diet, magnesium and calcium supplements had a profound effect on the muscle twitching and spasms. I did at that time suffer from a lot of morning diarrhoea! No-one took me seriously but I don't claim to be anywhere near as bad as you.

There was also a case on daytime TV recently where someone with some stomach condition was occasionally admitted for intravenous magnesium and calcium as he didn't absorb enough. He did suffer painful spasms until the minerals took effect and then he was fine.

So maybe! Fight on!

[loosebones]

I've had blood tests to look at fbc, electrolytes, and other stuff. All it showed so far was low iron, high b12, and that was all. What sort of tests do you need for calcium or magnesium?
At the moment with my bowels they don't work for days even though I live on laxatives and then suddenly I get morning diarrhoea - it's sooo painful!
I don't need to see a psychiatrist!!!

[Spireite]

I think you specifically have to ask for magnesium and calcium, as I have done a couple of times. My blood results are fine, but from what I remember off the top of my head from all those years ago when I was bad was that the level in the blood wasn't the total story and didn't reveal how much you had in storage in your body so to speak. The really nasty consultant wrote that in his horrible letter to the GP even, but no-one cared less.

I was amazed at the difference they made for me when I was really in a state years ago.

[nemonie]

The man with acute muscle spasms caused by low magnesium and calcium levels was on 'The real A&E'. He'd had part of his bowel removed and so had a severely reduced ability to absorb nutrients. With your gut problems at the moment I would think that you probably have a reduced ability to absorb nutrients if you are even getting them in the first place. As Spireite said specific blood tests for calcium and magnesium have to be done, as these are not standard bloods.

[Julie]

Hello

Im a little confused, i went to see my G.P today as ive had muscle spasms for years but recently after the spasm the muscles badly seize up. I was advised to try to lower my calcium intake but start taking magnesium supplements to help get the muscles released, but when i have searched on here many posts talk about taking calcium as well as magnesium, any advice?

[Spireite]

I started off just taking magnesium which helped. Then after more research I started taking calcium as well and that helped more. My research seems to suggest, like other vitamins and minerals, that it is the balance of the two which is important as they sort of compete. So in my opinion, you do need both but in the right balance. I'm not a doctor by the way, just someone who suffered badly for years but I'm now fine.

[anaqi]

Does anyone get jerks after a change in temperature? I have this weird thing where the muscles in my arms, legs and neck all go into a violent spasm when there is a cold draught sudden change in temperature. My hands fly up to shoulder height, my legs tense up, my head is thrown back and to one side and i take a sharp intake of breath, sometimes making a noise. It's like all my muscles contract and I can't move for a few seconds. I can't stop it from happening and I've injured myself many times but the doctors don't know what it is.

[gila]

hi anaqui
I get something which might be a little bit similar but way not as extreme as yours sounds like- and yep it can but doesnt always happen, when temperature suddenly changes to colder (draught/going from warm to colder room/sun disappearing behind clouds etc) but also sometimes when I'm 'slowly' going too cold

mine feels like as if spasm is running lightning fast from one muscle group to the next in split seconds-totally contracting muscles, contorting every bit in turn, making limbs fly off somewhat- and the way it runs over my back and into neck makes me feel as if my spine is being wildly contorted and at each contortion frozen like that for a split second at v odd angles-the back/neck bit actually hurts- my jaw/mouth tends to sort of clamp shut but then usually a high pitched shuddery squealy sound comes out-

friends actually tend to laugh when they see and hear it- but I dont mind in my case cause I have never really injured myself, apart from a wee bit of muscle strain or a mild sublux nothing has happened, there are no after effects and it really is a v v v brief thing, I reckon the whole thing has come and gone in less than a second or two

I always thought that was what in the old days got referred to as a shudder due to "someone walking over your grave" and that it was a common thing- but actually... none of my friends get/do this like me, the only one I know that does is my mum

but... I have no idea if this is like yours just milder, if it is something normal/common or why this might happen... sorry!
xxg