I have sensitive skin and have to be really careful about soaps, washing powder, make up etc. My 2nd daughter is the same. When she was about 9 months old she developed dermititis overnight from head to toe, and this carried on for a fortnight until she developed chicken pox.
It turns out that she had reacted to the chicken pox virus (I forget the name, one of the herpes?) for the whole time she was incubating chicken pox. We had a wonderful few weeks whewre she was covered in dermititis that needed moisturising, and chicken pox, that needs drying (calamine lotion). All we could do was swab her with boiled water!
Back to the topic, we are also both very fair skinned and burn very easily in the sun.
I also have always had very acute hearing (school teacher hearing we call it) although it has npow reached a point where I hear background noise so loud that it interferes with other noises, like someone talking to me.
I also have mild photophobia, and find I cannot drive far in the summer without my sunglasses.
I don't know how many of these things are related to the HEDS/HMS, I think some things exist in the general population therefore some of us will have them as well. Does that make sense?
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!