Impaired skin etc. healing/bruising in HMS?

Issues relating to disorders which are related to, or which may occur as a consequence of HMS. Including but not limited to: Ehlers-Danlos Syndrome, Marfans, Osteogenesis Imperfecta, Sticklers Syndrome, arthritis, depression, chronic fatigue syndrome. To include everyday problems such as IBS, eyes, teeth, etc.....

Re: recovering from surgery

Postby Myself205 » Fri May 20, 2011 9:37 pm

I saw the surgeon again today.
He said (again!) that people recover from the surgery I had in 2-3 weeks but I'm taking much longer. It's my 4th month of recovery!!!
I mentioned HMS but he disagreed and said that it affects joints but not healing.
He can't explain why it is taking so long though...
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Re: Impaired skin etc. healing/bruising in HMS?

Postby nemonie » Sat May 21, 2011 4:31 pm

Ask the idiotic surgeon why skin signs is one of the minor criteria in the diagnostic work-up for HMS (for hyper-extensibility, scarring, thin skin and stretch marks), if only the joints are involved then :roll:
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Re: Impaired skin etc. healing/bruising in HMS?

Postby Rosie » Sun May 22, 2011 12:46 pm

Hi Myself205

Your surgeon does not fully understand HMS/EDS-H if he thinks that there is no skin invovement in this condition. In HMS skin can be fragile, and so tears easily, and/or tissue (not just skin)can take a long time to heal. This is almost certainly the reason for your slow healing. If your surgeon is willing, you could suggest that he contacts one of the HMS specialists for an explanation of why healing can be so slow with HMS. Or you could look for any articles and suggest he reads them?

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Impaired skin etc. healing/bruising in HMS?

Postby meggy.nut » Tue May 24, 2011 4:34 am

I was looking at the scars from my arthroscopic shoulder surgery the other day..they look like little bugs :mrgreen:
A pointy ellipse from the incision with four little dots/legs from the stitching. Showed my hubby and he said "weird".
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Re: Impaired skin etc. healing/bruising in HMS?

Postby Rosie » Tue May 24, 2011 10:31 pm

Hiya

My daughter has a scar from where she had a small cyst removed from her arm. It always makes me think either of a water boatman, an insect that is so light it walks on the surface tension of water, filmed from below. Or it looks like a boat in a boat race like the Oxgord/Cambridge boatrace, where they row in 4s or 8s and are often filmed from above. Both of these are exactly as you describe, a pointy ellipse with dots on either side. In her case the scar itself is filled with cigarette paper type skin, and she has 3 dots on either side as she had 3 stitches. At the time I had nmo understanding of HMS and its implications for skin and healing, but in future I would request that the stitches be left in longer to try and avoid the spreading scar, and maybe use more stitches.

Rosie
Diagnosed HEDS December 1st 2005. DD1 (20) HEDS and scoliosis (now corrected by surgery), diagnosed June 2006. DD2 (18) mild HMS. Son (11) some hypermobile joints, poor muscle strength and seems to be developing scoliosis as well, woopee!
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Re: Impaired skin etc. healing/bruising in HMS?

Postby Spireite » Tue May 24, 2011 10:37 pm

Rosie,

That's my scar you are describing. I'd never thought of it being like the Oxford/Cambridge boat race but it certainly is. I had 3 stitches too, long before I knew about hms. I had been thinking if I ever have anything like that again, I will ask them to leave the stitches in much longer.
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Brusied fingers and toes?

Postby Kattykins » Mon May 30, 2011 11:17 am

For some reason I have started getting bruises on my fingers and toes. This is on the inside of my joints or under my toes (ie not my knuckles) and seems to occur spontaneously. The finger/toe then becomes very swollen and painful and this lasts for a while after the bruising has gone! I have mentioned it to GP/Rheumy and got the usual 'Oh yes so it does!'
Is it just me or does anyone else have this? I did a search but I can't find any mention of it! Please move this post if there is a thread.

Thanks!
modnote: merged into main skin/bruising thread
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Re: Impaired skin etc. healing/bruising in HMS?

Postby JoSo » Mon Jan 30, 2012 10:55 pm

Having endless fun with my skin atm, have just started my second 6 week course of antibiotics to treat folliculitis in the pressure sores from my ankle braces...I'm covered in little scars and red angry blobs some with indgrown hairs some with pussy bits some with open tops that will not close over...they run from my foot to about mis shin height on the sides of both legs and a few at hip level from the zips on my lycra fit hip braces...if anyone has any tips to help them heal up i'd be greatful...
my current regime:
Sudocrem
tea tree barrier cream from holland and barrett
antibiotics
Bio oil when they are healed enough (which isnt very often atm)
and tea tree shower gel and scrub every bath/showe time

gentle hugs all round hope everyones doin' alright
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Re: Impaired skin etc. healing/bruising in HMS?

Postby nemonie » Tue Jan 31, 2012 3:04 am

Hi Jo,

I had really bad eczema on my shins a while ago that got infected and went all pussy and gross :sick: I used neat tea tree oil on the broken skin (applied with a cotton bud or cotton wool pad) and invested in some dermasilk tube socks. You can get dermasilk regular socks too. I got mine from here but some of the items are available on prescription. They are intended to treat eczema and psoriasis, but are excellent to wear underneath splints and can be worn over infected skin to protect it and help heal it.
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Re: Impaired skin etc. healing/bruising in HMS?

Postby JoSo » Tue Jan 31, 2012 6:05 pm

Thanks for that! My mum just got me some silk sox and they are lovely, might have to get more :) x
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Re: Impaired skin etc. healing/bruising in HMS?

Postby sheppeyescapee » Tue Feb 07, 2012 10:12 pm

I seem to bruise rather easily. The blood pressure cuff they are using here at stanmore is covering my arms in bruises :S
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Re: Impaired skin etc. healing/bruising in HMS?

Postby star gazer » Tue Feb 07, 2012 10:32 pm

I had the same with my 24 hour b.p monitor it left bruise lines around the upper arm like a wrist grab that it too tight, and whenever it expanded it sub luxed my shoulder, I now dread having 24 hr b.p cos the arm is so sore by the end.
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Re: Impaired skin etc. healing/bruising in HMS?

Postby sheppeyescapee » Tue Feb 07, 2012 11:03 pm

yeah the same here.
J - 28,student,married to the lovely Em and live with 2 cats Bilbo and Pippin. Diagnosed with Aspergers, Dyspraxia, Dyslexia, EDS-HM, Mild Asthma, Chronic Pain, Chronic Fatigue, POTS, Syncope
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Re: Impaired skin etc. healing/bruising in HMS?

Postby Yecart09 » Mon Mar 05, 2012 5:28 pm

Hi not sure I'm posting this in the correct area so please feel free to move or delete.

I have always bruised easily and they take weeks to go away but I also have this so my question is, do any of you get what feels like a bruise near the bottom of your legs (shin & ankle area) and when you go to look there is no bruise to be seen but you run your fingers over it and the pain is very sore as if you have just bruised the area. I get them all the time but there's absolutely no mark to suggest a bruise just an invisible sore patch. Now the weird thing for me is I also get these sore patches on areas of my head, very similar to if you had bumped your head, but I have no lump and I def haven't bumped my head but if I brush my hair or run my fingers through my hair there are certain parts of my head that are extremely sore. I've always had this as long as I can remember so I've never really thought about it until I got diagnosed with HMS. I have been referred to Prof Ferrel and I am writing everything down that I have expierenced but I am unsure wether to include this incase he thinks I'm hallucinating.
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Re: Impaired skin etc. healing/bruising in HMS?

Postby nemonie » Wed Mar 07, 2012 8:55 pm

Hiya,

these I think are similar to fibro 'tender points' and a lot of us tend to get very sensitive to even light touch or pressure or touch in certain places on our bodies. My upper arms are very sensitive too any kind of touch or pressure in this way.
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